1,300 Wait For Free Dental Care In Pittsburgh

More than a thousand people waited in line to see a dentist at an annual free clinic in Pittsburgh. Some had never been to a dentist before.



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In the city of Pittsburgh, over a thousand people waited in line – some overnight – for the opportunity to see a dentist at a free dental clinic. Millions of Americans lack access to dental care. Katie Blackley with member station WESA reports.

KATIE BLACKLEY, BYLINE: Gregory Pflumm closes his eyes as the dental chair he sits in reclines. He’s been waiting outside Pittsburgh’s downtown hockey arena since 4:00 a.m. for this chance and says he’s going to take advantage of all the dental care he can today.

GREGORY PFLUMM: Surprisingly, I’m a – pretty much a medical experiment. Anything that they can help me out with helps me maybe later on being able to actually afford the rest of whatever I need.

BLACKLEY: Pflumm’s an Army veteran who receives his medical care at the VA hospital. But dental coverage is limited at the VA, and he says he’s been putting off a lot of this work for decades.

Beside him, oral surgery resident Valentina Zahran lowers a tool into Pflumm’s mouth and explains that it might go numb soon.

VALENTINA ZAHRAN: Open real big, and say ah. Perfect.

BLACKLEY: Pflumm and more than 1,300 others attended the weekend clinic. He got here early but says others were camped out overnight.

PFLUMM: There’s so many people out there that either don’t have insurance, don’t have a job, can’t afford insurance. Once a year, you can get at least something done.

BLACKLEY: The floor of the clinic is dotted with volunteers and dentists in pastel blue, yellow, pink and green scrubs. Once they’re inside the arena, patients are triaged and sent to these color-coded sections, which indicate departments like oral surgery, pediatric care and fillings.

Dentist Dave Sullivan says the clinic isn’t able to treat every oral issue but tries to give patients the best care possible. And if they can’t do it here, they’ll find somewhere else that does.

DAVE SULLIVAN: Patients can get their teeth cleaned in the hygiene department. They can get a root canal or endodontic therapy done. They can have fillings done. They can get teeth extracted. We even make removable partial dentures for them if they’re missing teeth.

BLACKLEY: This is the clinic’s third year, and it’s become one of the largest of its kind in the U.S. The dentists and volunteers try to put the patients at ease as best they can. They crack jokes and ask goofy questions and try to maintain a casual vibe. After all, many patients have never been to the dentist before.

UNIDENTIFIED DENTIST: I only want to hurt people on Wednesdays. What’s today?

UNIDENTIFIED PERSON: Not a Wednesday.

UNIDENTIFIED DENTIST: Today’s Friday. No hurting today.

BLACKLEY: Dentist Keith Young has been with the clinic since the beginning. He says everyone who talks with the patients is trained to make the experience comfortable. It’s a long day. But for many patients, this will probably be their only visit this year.

KEITH YOUNG: They’re coming in. They’re waiting in line four or five hours. They’re in this big arena. And they’re going to have teeth pulled. That’s scary. I mean, that really is. And that’s – so we try to make it as comforting as we possibly can when they come through.

BLACKLEY: Young says each year, organizers ask participants how long they’ve had dental pain. Last year, 45% of patients said they’d had a toothache or a problem with their dentures for more than a year. About a quarter of those surveyed said they visited the emergency room for temporary tooth relief.

YOUNG: They have nowhere else to go, so they go to the emergency room. And they don’t get treated. All they get is pain meds or some antibiotics, and they leave. So the problem still exists.

BLACKLEY: After the clinic, Young says patients meet with people in the health care industry who can connect them to a regular dentist and follow-up care. Providers offer preventative services and talk with patients about how to manage their oral health going forward. Patient Darlene Allen says after her visit today, she plans to schedule more.

DARLENE ALLEN: Well, I learned that a lot of other stuff can happen to you if you don’t keep your teeth in good condition. And I don’t want that.

BLACKLEY: Clinic organizers say it’s unfortunate that so many people can’t afford to go to the dentist, but they’ll continue to provide what they can until that changes. For NPR News, I’m Katie Blackley in Pittsburgh.

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Copyright © 2019 NPR. All rights reserved. Visit our website terms of use and permissions pages at www.npr.org for further information.

NPR transcripts are created on a rush deadline by Verb8tm, Inc., an NPR contractor, and produced using a proprietary transcription process developed with NPR. This text may not be in its final form and may be updated or revised in the future. Accuracy and availability may vary. The authoritative record of NPR’s programming is the audio record.

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Trump Team’s Bid To Make Hospital Costs More Transparent Is Data-Heavy

“As deductibles rise, patients have the right to know the price of health care services so they can shop around for the best deal,” says Seema Verma, who heads the Centers for Medicare & Medicaid Services and announced the Trump administration’s plan this week.

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Shopping around for the best deal on a medical X-ray or a new knee? The Trump administration has a plan for that.

This week, the administration proposed new rules that would provide consumers far more detail about the actual prices hospitals charge insurers. The proposal comes amid growing calls from consumer advocates, who argue transparency can help tackle rising health care costs. But the plan also has the potential to overwhelm patients with data.

Under the proposal, hospitals would be required to post the prices they negotiate with every insurer for just about every service, drug and supply they provide to patients, starting Jan. 1, 2020.

The move follows an executive order issued by the president in June. It immediately drew sharp opposition from hospitals and insurers, who made it clear they plan to fight the proposal — all the way to court if necessary.

Final rules might differ from the proposal — and the courts will be asked to weigh in. But the move could help lift the secrecy that has long surrounded what patients, employers and insurers actually pay for medical services.

“As deductibles rise, patients have the right to know the price of health care services so they can shop around for the best deal,” said Seema Verma, administrator of the Centers for Medicare & Medicaid Services, who announced the proposal Monday.

The plan, however, raises at least three questions:

Will consumers use it?

Some consumers will take advantage of price information, although maybe not many, say experts who have studied patient behavior.

The amounts would be different from what currently exists on websites run by some insurers, hospitals and private businesses because they would be actual negotiated prices, not area averages, estimates or hospital-set “charges,” which are amounts set by hospitals and usually far higher than the negotiated rates.

Even so, “a lot of things can get in way of patients using the data,” says Lovisa Gustafsson, assistant vice president at the Commonwealth Fund.

There may be only one hospital in town, for example, or patients might be reluctant to switch if they have a relationship with a specific hospital. Incentives to shop might be hampered, too, if a patient’s share of the cost of a procedure or test is small. Finally, only a portion of medical care is “shoppable,” meaning patients have time to look around and compare prices before they undergo the procedure or receive the treatment.

Still, when price data is available, some patients — particularly those with high deductibles that haven’t been met — will shop and choose a lower priced provider, Gustafsson says.

Experts point to consumer behavior in New Hampshire, which posts price information by insurer online. Only a small percentage took advantage of the online look-up tool, but those who did saved money, according to a recent study by Zach Brown, an assistant professor of economics at the University of Michigan.

Still, the new dataset proposed by the Trump administration might simply be too overwhelming for many consumers.

Although the proposal requires the information be presented so it can be searched online, it will be a huge dataset.

Start with the fact that each hospital has tens of thousands of charges, from room fees to suture costs to the price of each tablet of aspirin. Then multiply that by the number of insurers that contract with each hospital and the total amount of data could be staggering.

Patients would need to know what tests, procedures, supplies and even drugs they might need for a given hospitalization, then add them up — for every hospital they are considering.

To help consumers, the proposal would also require hospitals to provide information on 300 “shoppable services” — say a knee replacement — and include the price of all the related services that go with it, rather than expecting patients to somehow try to add them up a la carte.

But will it lower prices?

The short answer to whether the plan will reduce prices is maybe. But no one knows for sure.

“We’ve never had price transparency, so there is no evidence to point to exactly what it would do,” says Gustafsson.

In retail, having price information from shopping websites like Amazon has helped drive prices down. But when the Danish government required concrete manufacturers to disclose negotiated prices, those prices went up, according to a study trotted out by skeptics of the price transparency approach.

So, is health care like retail or cement?

On one hand, having actual price information can give self-insured employers and health insurers a stronger hand in negotiations, so they could demand better deals from hospitals. But it could also spur some hospitals to raise their prices if they think competitors are getting a better deal from insurers.

Business professor George Nation, who studies hospital pricing at Lehigh University, lands on the side of the argument that more price information can help lower prices, especially if employers and insurers use it to demand steeper discounts.

“This money is coming out of employers’ pockets,” he says. “They’re going to say, why, if Hospital B can do this for $300, why are you charging me $600? Justify your charge.”

While that won’t work in areas with a strong hospital monopoly, it’s a start, Nation says.

“You can’t have price competition without knowing the price. And that’s where we have been living.”

Is Trump’s plan likely to become law?

Again, the answer to whether the proposal will become law is maybe.

It could be modified after the administration reviews public comments, which are due Sept. 27.

And after it’s finalized, there may well be a legal battle.

Hospitals and insurers didn’t wait to take the first shots.

Shortly after the proposed rule was released late Monday, their trade organizations released sharply critical statements. They’ve long opposed efforts to reveal their negotiated prices, which they say are trade secrets.

The Trump plan will backfire, America’s Health Insurance Plans predicted: “Posting privately negotiated rates will make it harder to bargain for lower rates, creating a floor — not a ceiling — for the prices that hospitals would be willing to accept.”

We’ll see you in court, was the not too thinly veiled threat that came from the American Hospital Association, which said the proposal “misses the mark, exceeds the administration’s legal authority and should be abandoned.”

But Medicare administrator Verma was unfazed. When asked by reporters about the potential for a legal battle over the proposal, she said, “We’re not afraid of that.”

Still, on the legal front, matters could get complex.

Currently, the administration is backing a lawsuit from 18 red states that are seeking to have the entire Affordable Care Act overturned, including, presumably, any authority it gives the administration to require hospitals to post prices.

Again, Verma was not worried: “If there are any changes to the ACA, we would work with Congress to keep what’s working and get rid of what’s not,” she said at the press conference.

Nation says the attention the proposal is getting from industry backs his contention that there might must be something to it.

“The strength of the opposition is indication this may work to lower prices,” he says.

Kaiser Health News is a nonprofit, editorially independent program of the Kaiser Family Foundation. KHN is not affiliated with Kaiser Permanente.

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Seizures Of Methamphetamine Are Surging In The U.S.

A rock of crystal methamphetamine lifted from a suspect in Orange County, Calif. This fall, the Centers for Disease Control and Prevention expects to begin collecting more local information about the rising use of meth, cocaine and other stimulants.

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Methamphetamine, an illegal drug that sends the body into overdrive, is surging through the United States. Federal drug data provided exclusively to NPR show seizures of meth by authorities have spiked, rising 142% between 2017 and 2018.

“Seizures indicate increasing trafficking in these drugs,” says John Eadie, public health coordinator for the federal government’s National Emerging Threats Initiative, part of the High Intensity Drug Trafficking Areas program. “So if seizures have more than doubled, it probably means more than double trafficking in methamphetamines. And with that go additional deaths.”

Overdose deaths involving meth and other psychostimulants did rise last year — by 21% (to 12,987 from 10,749 in 2017) — according to provisional data from the Centers for Disease Control and Prevention. Deaths from cocaine and fentanyl were up too. But overdose deaths dropped overall because of a decline in the number of fatalities tied to pain pills.

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For decades, meth has been associated with working-class Americans trying to hold down two or more jobs and has been popular in some gay communities, but it hasn’t been widely available in every region of the country. Now that’s changing too. Seizures of meth are up, sometimes dramatically, in pockets of nearly every state in the U.S., based on data collected in 32 High Intensity Drug Trafficking Areas.

“It was all about the meth”

There are many paths to meth use. Some drug users say they take it to pick themselves up after taking downers: heroin or fentanyl. Those on the streets say they take it to stay awake at night and avoid rape or robbery. Meth offers a relatively cheap high that can last days. That means fewer injections and less worry about finding money for the next hit. And some drug users pick up meth because they are terrified of fentanyl, the opioid that can shut down breathing in seconds.

Mike Leslie, in Falmouth, Mass., no longer uses any drugs to get high. But he says that of all the opioids and stimulants he has used, meth wrecked his life so fast that he hardly knew what was happening.

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“I knew if I went back to using fentanyl, I would likely overdose and die,” says Mike Leslie, 37, who has overdosed on fentanyl twice.

Leslie found his way to meth after more than 20 years of drug use that started with marijuana and alcohol, progressed to cocaine and then led to opioids: pain pills, heroin and fentanyl. Leslie had been off fentanyl for about four years last fall when he ran into an old acquaintance on the streets of Boston and that urge to get high took over.

“He was selling meth. It was basically the one thing out there that I hadn’t tried,” Leslie says. “Now it was readily available. So I tried it.”

Leslie says meth wrecked his life so fast that he hardly knew what was happening. He’d kept working while on heroin, but four months after his first hit of meth, he had lost his job as a recovery outreach worker, had dropped out of graduate school and was sleeping on the floor of a train station.

“As soon as I tried it, I was no longer functioning,” Leslie says. “It was all about the meth.”

Leslie sets out books for a 12-step meeting at Saint Patrick’s Church in Falmouth. Federal tracking data have shown an increase in prescribed stimulants like ADHD meds, as well as in authorities’ seizures of meth.

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Leslie had tried a weaker drug in the same class as meth a few years ago — Adderall, the medication for attention deficit hyperactivity disorder. He persuaded a doctor that he needed the pills to concentrate but says he just used them for a mild high and rush of energy while he was recovering from heroin and fentanyl. But Leslie’s deception might be a window into an even bigger problem when it comes to stimulants.

An emerging stimulant epidemic?

Eadie, who tracks the country’s prescription drug monitoring programs, says the data from the High Intensity Drug Trafficking Areas show an increase in prescribed stimulants like ADHD meds. They show that seizures of cocaine are rising too, though not as fast as meth. Combine the legal and illegal stimulants, with meth leading the way, and Eadie says it looks like there’s an emerging stimulant epidemic, entwined with the opioid crisis.

“We’re seeing almost as many people starting up methamphetamines and cocaine and prescription stimulants as are abusing the opioids,” Eadie says. “So the problem is getting worse at the moment, and it’s getting more complicated to deal with.”

Half of the people who died after a meth overdose in 2017 also had an opioid in their system, according to an analysis that the Centers for Disease Control and Prevention released in May. That same report showed 73% of cocaine deaths included opioids. The CDC is stepping up prevention and surveillance efforts to get a better understanding of what’s happening with stimulants. In September, it expects to begin collecting more local information about meth, cocaine and other stimulants, as it does now with opioids.

“We know that the relationship between stimulants and cocaine is a growing problem, and it requires an increase in public health and data collection efforts so that we can implement effective and comprehensive drug overdose prevention,” says Mbabazi Kariisa, a health scientist at the National Center for Injury Prevention and Control at the CDC.

Meth means new problems and dangers for first responders

The complications are not news to Bradley Osgood, the chief of police in Concord, N.H., which has one of the highest opioid overdose death rates in the United States.

“Methamphetamine just presents a whole new issue for us,” says Osgood, “and our officers are getting hurt. We’ve had concussions. We’ve had broken hands.”

He says officers may need to run through traffic after someone who is high and leaping between cars. Sometimes most of the nine Concord officers on duty at any one time are needed to restrain one person thrashing about on meth. Concord police get crisis intervention training and know how to calm residents who have uncontrolled mental health issues, but Osgood says those same techniques don’t seem to work with people high on meth.

Osgood says calls to reverse an opioid overdose have started to drop in Concord because more people have the opioid-reversal drug naloxone, brand name Narcan, and use it themselves. But meth is more than filling that gap.

“It’s surpassed what we’re seeing from heroin and fentanyl,” Osgood says. “The rise in meth has just been unbelievable.”

There is no drug like naloxone that police officers or family members can use to reverse an overdose from meth or other stimulant — a racing heart, dangerously high blood pressure and extreme sweats. Deaths involve a heart attack or stroke.

Dr. Melisa Lai-Becker, chief of emergency medicine, stands in one of the resuscitation rooms in the emergency ward at CHA Everett Hospital, near Boston. In the past 10 years, Lai-Becker says, she hardly saw any stimulant overdoses. These days, there are about four a week.

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Dr. Melisa Lai-Becker, who runs the emergency department at CHA Everett Hospital outside Boston, says she and her staff often get hurt, as Osgood’s officers do, before they can inject a sedative, typically a benzodiazepine, to calm someone down. Figuring out how much of which benzo to give is an art, Lai-Becker says, because she doesn’t know how much of what kind of stimulant the person took.

“You’re looking at the speedometer, and you’re trying to get them down from going 148 miles per hour down to 60 miles per hour,” she says. “You want to get them to right around the speed limit, but you don’t want to bring them all the way to a full stop.”

In that case, doctors have to restart breathing and maybe the patient’s heart. For the past 10 years, Lai-Becker says, she hardly saw any stimulant overdoses. These days, there are about four a week.

Meth’s path into the U.S.

If a person is on meth, the U.S. Drug Enforcement Administration says it more than likely came into the U.S. from Mexico. Jon DeLena, associate special agent in charge for the New England Field Division, recently toured a crystal meth lab in a Mexican jungle that the Mexican military said was producing 7 tons every three days.

A Sinaloa state police officer works during the dismantling of one of three clandestine laboratories that were producing synthetic drugs, mainly methamphetamine, in Eldorado, Mexico.

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“It was enormous. It was incredible,” DeLena says. “Those are the drugs that are coming into the United States and ultimately up into our region.”

DeLena says the Mexican cartels put almost all U.S. domestic meth producers out of business several years ago with a cheaper, more potent version of the drug that travels into the U.S. through the same channels as fentanyl and cocaine. He says cartel leaders realized that drug users would want an alternative to fentanyl.

“They study the trends just like people here study the stock market,” DeLena says. “They know what the next trend is going to be, and sometimes they force that trend upon people. And that’s exactly what they’re doing in this case.”

Some doctors, researchers and recovery program leaders worry that growing attention to meth might slow the expansion of medication-assisted treatment and other efforts to reduce opioid overdose deaths.

“That’s the real focus nationally,” says Traci Green, deputy director of the Injury Prevention Center at Boston Medical Center. But “we need to start paying a lot more attention to stimulants, quickly.”

Mike Leslie says he worries that other drug users aren’t taking meth seriously because they don’t think that it, like fentanyl, will kill them.

“Meth is extremely dangerous, but the chance of overdose is not as great as it is with opiates, so people, from my experience, have less of a desire to get clean from the meth,” he says.

With the help of 12-step meetings, Leslie says, he has begun to reconnect with his family. But he worries that other meth and stimulant users don’t take the risk of overdose seriously enough.

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Leslie says he’s no longer using any drugs. And with the help of 12-step meetings, he’s reconnecting with his family.

“I’ve put my family and my parents especially through hell and back,” he says. Now, “the way my parents put it, for me to give them their son back is the best thing I could do.”

But the rising drug-seizure numbers suggest there’s more hell ahead for communities across the country facing a new or renewed wave of meth.

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Bill Of The Month Update On Story Involving Kidney Dialysis

The medical bill of the month story that Morning Edition brought you last Monday — half a million dollars for kidney dialysis — has been reduced to zero by the company that owns the dialysis center.



STEVE INSKEEP, HOST:

All right. We told you one week ago about a Montana man, Sov Valentine, who received a bill of more than half a million dollars for 14 weeks of kidney dialysis. His bill was reduced by half by the time of our broadcast. Now he’s received even more good news. Kevin Trevellyan of Montana Public Radio has the story.

KEVIN TREVELLYAN, BYLINE: Late last week, after reports on NPR and CBS, Fresenius, the dialysis company that sent Sov Valentine the bill, said they would waive it. He owes nothing. Valentine is a 50-year-old personal trainer who suddenly developed kidney failure in January. He said he felt relief at the news.

SOV VALENTINE: It felt like a victory. You know? It felt righteous.

TREVELLYAN: But there was also frustration that he had to face potential bankruptcy while fighting a life-threatening disease.

VALENTINE: So it just felt really wrong from the very beginning. You know, like, when people – when there’s a hurricane, and they try to sell water for $10 a gallon and this kind of stuff?

TREVELLYAN: The huge bill stemmed from treatment Valentine got at an out-of-network Fresenius clinic in Missoula, 70 miles from his home in rural Montana. He and his wife, Jessica, who is a doctor, said they had been told by their insurer that there were no in-network clinics in the entire state. The insurer now says that was a misunderstanding. The Valentines were bracing for a bill, but no one could tell them how much it would cost. Then the bills came.

VALENTINE: It was just boom – $140,000, $145,000. And then a month and a half or so later, boom – $540,000. And they wanted it in 10 days and had already started sending us collection notices.

TREVELLYAN: A Fresenius spokesman said the company waved Valentine’s bill because he should have been treated as in-network from the beginning, and it is negotiating with Valentine’s insurance company now. But Valentine says that’s backpedaling.

VALENTINE: You know, it’s a slap in the face ’cause we were doing research and talking with them, and Jessica would be on the phone for four hours at a time on her days off.

TREVELLYAN: Now Valentine is preparing for a kidney transplant. There’s not much he would do differently following his billing ordeal. He felt he dotted all his i’s and crossed all his t’s from the beginning. For NPR News, I’m Kevin Trevellyan in Missoula, Mont.

INSKEEP: Our Bill of the Month segment is produced in collaboration with Kaiser Health News.

Copyright © 2019 NPR. All rights reserved. Visit our website terms of use and permissions pages at www.npr.org for further information.

NPR transcripts are created on a rush deadline by Verb8tm, Inc., an NPR contractor, and produced using a proprietary transcription process developed with NPR. This text may not be in its final form and may be updated or revised in the future. Accuracy and availability may vary. The authoritative record of NPR’s programming is the audio record.

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Kamala Harris Releases ‘Medicare For All’ Plan With A Role For Private Insurers

Sen. Kamala Harris, D-Calif., cosponsored Vermont Sen. Bernie Sanders’ “Medicare for All” bill, along with several other 2020 candidates, when it was released in 2017. Her plan has some key differences with Sanders, including a larger role for private insurance and a higher threshold for taxing household income.

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California Sen. Kamala Harris has released a health care plan just in time for the second Democratic debate, offering a role for private insurance in a “Medicare for All” system and outlining new taxes to pay for it.

The plan comes after months of questions about whether she supports scrapping private insurance — and as former Vice President Joe Biden appears to be gearing up to attack her at the upcoming debate on her support for Medicare for All.

To review, Bernie Sanders’ single-payer health plan is called “Medicare for All,” and Kamala Harris is a cosponsor on that plan (along with several other presidential candidates, including N.J. Sen. Cory Booker, N.Y. Sen. Kirsten Gilibrand, and Massachusetts Sen. Elizabeth Warren). His plan would cover all Americans with a government-administered healthcare plan.

While Harris has cosponsored Sanders’ plan, she has also diverged from Sanders’ vision on the campaign trail, most notably on the role of private insurance.

Here are how some key elements of the Harris proposal match up.

Private insurance: Under Harris’ plan, private insurance would have a bigger role than under Sanders’ plan. Harris envisions a system like the current Medicare system, in which people can either purchase government-administrated Medicare plans or buy Medicare plans from private companies — an option known as Medicare Advantage.

That’s a big difference from Sanders’ plan, under which any insurance that duplicates the coverage provided by his Medicare for All system would be banned. As his version of Medicare for All is very expansive (covering dental and vision, for example, in addition to more basic medical care), that would mean a tiny role for private insurance.

Harris says there would still be room for employer-sponsored coverage under her plan. After a 10-year transition period (more on that below), employers could still offer insurance, according to her campaign. They would, however, have to get those plans certified as Medicare plans through the government to meet certain standards, including cost and quality of coverage.

New taxes: One key revenue-raiser Sanders has proposed for Medicare for All is what his plan calls a 4-percent “premium” on household income over $29,000. Harris’ plan would only impose that tax on households over $100,000, and would also raise even that threshold for households in “high-cost areas.”

To add to that revenue, Harris proposes taxes on financial transactions like stock and bond trades.

Transition time: Bernie Sanders’ plan calls for a four-year transition to his single-payer system. Harris would have a 10-year transition, and both would allow a public option, where Americans below age 65 could buy into the government’s Medicare program, in the first year.

This comes with costs and benefits — on the one hand, it’s a more extended time to make a big transition in how America does health care.

On the other hand, a 10-year phase-in window necessarily means counting on the transition to continue smoothly under the next president — whichever party he or she might come from.

Details: Sanders already has legislation introduced on Capitol Hill, whereas Harris has here released a broad outline of her plan. Key details — like, for example, more exact information on that what that 10-year transition would look like — still don’t exist. (That said, Sanders’ plan

Questions left to answer

One area that will most definitely get plenty of scrutiny is costs, both in the aggregate and individually. Among the unanswered questions in Harris’s plan: How much will the plan ultimately cost, and will those tax hikes cover it? And would this bring American health costs down overall? Harris says it would, but her initial plan did not offer detailed figures to explain how.

On top of that, individuals are going to want to know if their total health care costs — counting any premiums and taxes — under this plan would be greater or less than their current health care costs. And healthcare providers are similarly going to wonder how much they will be paid through the plan — one of the biggest questions surrounding Sanders’ Medicare for All plan.

And then there are the political questions Harris’ plan raises: Were she the nominee, would her plan — not exactly a single-payer plan — satisfy single-payer purists? Would it be too big of a change for people who favor a more moderate approach? And, of course: could it pass Congress?

Setting up the next debate

The new Harris plan at least partially answers one question that has been looming over her campaign for months: How much of a role should private insurance have? In January, in response to a question at a CNN town hall about private insurance, she said she wanted to “eliminate all of that.” But then, she later said she would favor some form of “supplemental” private insurance.

Similarly, in the last Democratic debate, she raised her hand to a question about whether she would support the elimination of private insurance, but then later said she thought the question referred to her own personal insurance.

This plan also places Harris in the spectrum of policy reforms that Democratic candidates have put forward. Her plan is less drastic (and with a less drastic timeline) than Sanders’ plan, but could mean much bigger changes than, for example, a public option plan like those that Biden, South Bend Mayor Pete Buttigieg, and former Texas Rep. Beto O’Rourke favor.

It also tees up a debate with Biden over how to pay for her plan. He had indirectly swiped at Harris over the idea of implementing Medicare for All without raising taxes on the middle class: “Come on! What is this, is this a fantasy world here?”

In their last debate match up, Harris attacked Biden harshly over his past opposition to federally mandated busing. The two will share the stage again on Wednesday night, the second night of this week’s debate. Biden has promised he’s “not going to be as polite” this time.

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Genetic Counselors Of Color Tackle Racial, Ethnic Disparities In Health Care

Altovise Ewing, who has a doctorate in human genetics and counseling, now works as a genetic counselor and researcher at 23andMe, one of the largest direct-to-consumer genetic testing companies, based in Mountain View, Calif.

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Altovise Ewing was a senior at Rhodes College in Memphis, Tenn., when she first learned what a genetic counselor was. Although she had a strong interest in research, she suspected working in a lab wasn’t for her — not enough social interaction.

Then, when a genetic counselor came to her class as a guest lecturer, Ewing had what she recalls as a “lightbulb moment.” Genetic counseling, she realized, would allow her to be immersed in the science but also interact with patients. And maybe, she thought, she’d be able to help address racial health disparities, too.

That was 15 years ago. Ewing, who went on to earn a doctorate in Genetics and Human Genetics/Genetic Counseling from Howard University, now works as a genetic counselor for 23andMe, one of the largest direct-to-consumer genetic testing companies. As a black woman, Ewing is also a rarity in her profession.

Genetic counselors work with patients to decide when genetic testing is appropriate, interpret any test results and counsel patients on the ways hereditary diseases might impact them or their families. According to data from the U.S. Department of Labor’s Bureau of Labor Statistics, the number of genetic counselors is expected to grow by 29% between 2016 and 2026, compared with 7% average growth rate for all occupations.

23andMe’s Ewing says the lack of ethnic diversity among genetic counselors in the U.S. reduces some people’s willingness to participate in clinical trials, “because they’re not able to connect with the counselor or the scientist involved in the research initiative.”

Karen Santos for NPR


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Karen Santos for NPR

However, despite the field’s rapid growth, the number of African Americans, Hispanics and Native Americans working as genetic counselors has remained low.

As genetics’ role in medicine expands, diversity among providers is crucial, say people working in the field. “It is well documented that people want medical services from people who look like them, and genetic counseling is not an exception,” says Barbara Harrison, an assistant professor and genetic counselor at Howard University.

Ana Sarmiento, who wrote her master’s thesis on the importance of diversity among genetic counselors, has seen this firsthand.

“I can’t tell you how many times I’ve seen the look of relief on a Spanish-speaking patient’s face when they realize they can communicate with me,” says Sarmiento, a recent graduate of Brandeis University’s genetic counseling program. “It’s what keeps me passionate about being a genetic counselor.”

Ethnic and gender diversity among providers can also increase the depth and scope of information patients are willing to share in the clinical settings — information that’s important to their health.

“In my opinion,” says Erica Price, who just received her master’s in genetic counseling from Arcadia University, “no one fights for the black community the way other black people do. I encounter a lot of other African Americans who don’t know what genetic counseling is. But when they find out that I’m a genetic counselor, they will give me their entire family medical history.”

Bryana Rivers, who is African American, recently graduated from the University of Cincinnati’s genetic counseling program, and wrote last year about her experience with a black mother whose two children had undergone extensive genetic testing to try to determine the cause of their developmental delays.

Having a firm diagnosis, the mother explained to Rivers, could help the children get access to the resources they needed in school. The mom wanted to know if the genetic variant that had been identified in her children — one that geneticists had decided was a “variant of unknown significance” — had been observed in other black families.

That question, which she hadn’t brought up in earlier discussions with health providers who weren’t African American, led to a broader, candid discussion of what these unknown variants mean and don’t mean, and why they are more common among members of understudied minorities.

“I cannot stress enough how important it is for patients to feel comfortable, to feel heard, and to know that they will not be ignored or discriminated against by their providers based on the color of their skin,” Rivers wrote in her blog post.

“I don’t want to suggest that a genetic counselor who wasn’t black wouldn’t have listened to her, but there are factors outside of what we do and say that can have an impact on our patients. Just the fact that she was able to lower her guard a bit because we share the same racial background as her speaks volumes.”

In an interview Rivers also recounted a recent session conducted by a white female genetic counselor that Rivers was shadowing that day. The patient, who was a black woman, addressed all of her answers to Rivers, although Rivers’ official role was to merely observe the appointment.

“I do feel a responsibility as a black provider to look out for my black patients and make sure they are receiving the appropriate care,” Rivers says. “Not everyone is willing to go that extra mile, and they may be more dismissive of the concerns of black patients and may not actually hear them.”

Ewing, who also conducts research, adds that the lack of diversity among genetic counselors has had a negative impact on research.

“The lack of diversity has an effect on the willingness of minorities to pursue clinical trials, because they’re not able to connect with the counselor or the scientist involved in the research initiative,” she explains. “We are now in the era of precision and personalized medicine and we need people who are comfortable talking about genetic and genomic information with people from all walks of life, so that we’re reaching all demographics.”

Since 1992, the National Society of Genetic Counselors, the largest professional organization for genetic counselors in the United States, has conducted an annual survey on the demographics of its members. Between 1992 and 2006, non-Hispanic white genetic counselors made up 91 to 94.2% of the NSGC’s membership.

In 2019, 90% of survey respondents identified as Caucasian, while only 1% of respondents identified as Black or African-American. Just over 2% of respondents identified as Hispanic, 0.4% identified as American Indian or Alaskan Native.

Some genetic counselors cite a lack of awareness among underrepresented minorities of genetic counseling as a profession as a major barrier to diversity in the field. Rivers says she had little exposure to genetic counseling as a future career path while enrolled as a biology major at the University of Maryland.

“My university stressed medical school, nursing school, or a Ph.D. in the biological sciences,” Rivers recalls. “I only had one professor in four years bring up genetic counseling.”

Samiento concurs. “You don’t have 6-year-olds running around saying ‘I want to be a genetic counselor’ — because it’s not a high visibility profession,” she says. “There are also very few minority professionals in the training programs and it takes a brave minority to look at the sea of white female faces and say ‘yes I can fit in here.’ “

“Genetic counseling is still a relatively new profession and there hasn’t been enough time and exposure for people to view [the field] the way they view other medical professions,” says Price. “People have asked me why I would pursue genetic counseling when I could be a physician assistant or a nurse or go to medical school.”

After Price’s acceptance to graduate school, one of her undergraduate professors questioned her chosen career path. “She said to me, ‘You’re a black woman in the sciences. We could have gotten you into a Ph.D. program or something where you’re making more money.’ “

As a part of its strategic plan for the years 2019-2021, the NSGC has identified diversity and inclusion as one of its four areas of strategic focus. Specific plans include developing mechanisms to highlight genetic counseling as a career in hard-to-reach communities by the end of the year. Erica Ramos, who is the immediate past president of the NSGC and serves as the board liaison to the task force, says she is optimistic that the numbers of underrepresented minorities in the field will improve.

“People in the profession have realized that we have blinders on,” she says. “But as an organization, the NSGC has been asking questions about how we can improve on diversity and be supportive of existing minority genetic counselors. We had 100 people apply to serve on the task force.”

A number of genetic counselors from diverse backgrounds have also come together to form their own support and advocacy networks. In November 2018, the Minority Genetic Professionals Network was formed to provide a forum for genetic counselors from diverse backgrounds to connect with one another.

Erika Stallings is an attorney and freelance writer based in New York City. Her work focuses on health care disparities, with a focus on breast cancer and genetics. Find her on Twitter: @quidditch424.

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