{"id":15370,"date":"2018-03-19T19:24:00","date_gmt":"2018-03-19T19:24:00","guid":{"rendered":"http:\/\/associatednews.us\/content\/2018\/03\/19\/black-and-latino-children-are-often-overlooked-when-it-comes-to-autism\/"},"modified":"2018-03-19T19:24:00","modified_gmt":"2018-03-19T19:24:00","slug":"black-and-latino-children-are-often-overlooked-when-it-comes-to-autism","status":"publish","type":"post","link":"https:\/\/associatednews.us\/content\/black-and-latino-children-are-often-overlooked-when-it-comes-to-autism\/","title":{"rendered":"Black And Latino Children Are Often Overlooked When It Comes To Autism"},"content":{"rendered":"<p><span style=\"font-style:italic;font-size:16px\">By  <a class=\"colorbox\" href=\"https:\/\/www.npr.org\/sections\/health-shots\/2018\/03\/19\/587249339\/black-and-latino-children-are-often-overlooked-when-it-comes-to-autism?utm_medium=RSS&amp;utm_campaign=healthcare\">Casey Rentz<\/a><\/span>  <\/p>\n<div class=\"ftpimagefix\" style=\"float:left\"><a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.npr.org\/sections\/health-shots\/2018\/03\/19\/587249339\/black-and-latino-children-are-often-overlooked-when-it-comes-to-autism?utm_medium=RSS&amp;utm_campaign=healthcare\"><img decoding=\"async\" width=\"150\" src=\"https:\/\/media.npr.org\/assets\/img\/2018\/03\/19\/autism-and-race_wide-49cd959c04211be1e41167f78015ed4a1d9bcada-s1100-c15.jpeg\" alt=\"Mounting research suggests that African-American and Latino children with autism are diagnosed late because of bias on the part of health care providers or a lack of information among patient families.\"><\/a><\/div>\n<div>\n<div>\n<div><a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/media.npr.org\/assets\/img\/2018\/03\/19\/autism-and-race_wide-49cd959c04211be1e41167f78015ed4a1d9bcada-s1200.jpeg\">Enlarge this image<\/a><\/div>\n<\/div>\n<div>\n<div>\n<div><\/div>\n<\/div>\n<p><span><\/p>\n<p>        Shannon Wright for NPR<\/p>\n<p>    <\/span><\/div>\n<\/div>\n<p>Sherry Alvarez says she knew there was something different about her son since he was about 9 months old. Back then Sherry says his pediatrician told her there was nothing to worry about, &#8221; &#8216;Boys are a little slower than girls, so let&#8217;s just wait until his second birthday.&#8217; &#8221; We aren&#8217;t using Sherry&#8217;s son&#8217;s name to protect his privacy.<\/p>\n<p>By her son&#8217;s second birthday, Sherry says she was getting desperate. She didn&#8217;t know why he wasn&#8217;t talking yet or showing affection like other kids. At 2 1\/2, he was referred to Children&#8217;s Hospital Los Angeles.<\/p>\n<p>There, after four hours of tests, Sherry says the doctor handed her a 20-page report explaining his autism spectrum disorder diagnosis, among others. She says she was paralyzed by emotion.<\/p>\n<p>ASD is a disease that affects people of all races and ethnicities, but <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/www.jaacap.com\/article\/S0890-8567(09)60739-5\/abstract\">research <\/a>shows that African-American and Latino children with autism are diagnosed at older ages than white children, giving them less of an opportunity for proper intervention and treatment.<\/p>\n<p>This is especially true of minimally verbal kids like Sherry&#8217;s son and there are many possible reasons for a late diagnosis. Some families face healthcare access issues and prohibitive costs for treatment, and some families just don&#8217;t know how important it is to get diagnosed to move on to the treatment phase. The dialog between doctors and minority families during the diagnosis process is critical.<\/p>\n<aside>\n<div><\/div>\n<\/aside>\n<p><a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.ncbi.nlm.nih.gov\/pubmed\/29100475\">A recent study<\/a> from Georgia State University found that African-American parents reported fewer concerns about behaviors like delayed speech and repetitive behaviors, even though their children showed a greater severity with these symptoms, overall. But, of course, it isn&#8217;t all up to parents.<\/p>\n<p>&#8220;There are very likely parent aspects of this and very likely clinician aspects of this,&#8221; says Meghan Rose Donohue, a lead researcher on the study. Perhaps families, like Sherry&#8217;s, don&#8217;t have the information necessary to really push physicians, but it is also possible that doctors don&#8217;t take these cases seriously enough from the beginning.<\/p>\n<p><!-- END ID=\"RES594922175\" CLASS=\"BUCKETWRAP INTERNALLINK INSETTWOCOLUMN INSET2COL \" --><\/p>\n<p>Families and doctors, alike, can mistake ASD for simple bad behavior, especially in boys, as research has shown over the past couple of decades. <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.ncbi.nlm.nih.gov\/pubmed\/11575603\">A 2001 study<\/a> at McGill University in Montreal found that doctors were more hesitant to diagnose ASD in minority families.<\/p>\n<p>In 2007, <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.ncbi.nlm.nih.gov\/pubmed\/17160456\">a study<\/a> by a team at the Center for Autism and Developmental Disabilities Research and Epidemiology, University of Pennsylvania, found that African-American children were 5.1 times more likely to be misdiagnosed with conduct disorders before being diagnosed with ASD.<\/p>\n<p>When Sherry was growing up, she had a cousin who the family thought of as &#8220;different,&#8221; she says. &#8220;He was basically hidden. We didn&#8217;t talk about it as a community.&#8221; He had autism. &#8220;We have to retrain ourselves. It&#8217;s not OK to hide our kids.&#8221;<\/p>\n<p><a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/www.dds.ca.gov\/RC\/\">Regional Centers<\/a> in Los Angeles, which offer services to the developmentally disabled, are now starting to look at the diagnosis disparity problem. Westside Regional Center in Culver City just received a grant from the state to look at how autism diagnosis disparities manifest within their intake and treatment programs.<\/p>\n<p>&#8220;We&#8217;ve implemented a series of trainings with intake counselors on cultural awareness and sensitivity, and we&#8217;re starting to have a lot of conversations about biases,&#8221; says Tom Kelly, Westside&#8217;s chief psychologist.<\/p>\n<p>One of the apparent biases among intake counselors at the center stems from the difference in the documentation that arrives with each new child. African-American families tend to arrive at the center with lots of documentation detailing behavior issues from their child&#8217;s school or social services. With all those official papers sitting in front of them, it&#8217;s much easier for a counselor to think &#8220;behavior disease&#8221; rather than &#8220;autism,&#8221; says Kelly.<\/p>\n<p><!-- END ID=\"RES594922899\" CLASS=\"BUCKETWRAP INTERNALLINK INSETTWOCOLUMN INSET2COL \" --><\/p>\n<p>And that disparity exists in dollars spent, as well. As reported in <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/issuu.com\/publiccounsel\/docs\/assuring_equitable_funding_of_servi?e=29495352\/49041713\">a 2017 survey<\/a>, South Central Regional Center spends $8,000 less per client than the Westside location and the racial disparity <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/www.calhealthreport.org\/2016\/12\/12\/marked-racial-disparities-in-money-spent-to-help-disabled\/\">persists statewide<\/a>.<\/p>\n<p>But there are more resources for minority families today than compared to when Sherry&#8217;s son was young. The Autism Society of Los Angeles runs a hotline to help parents navigate the diagnosis and healthcare landscape and Children&#8217;s Hospital Los Angeles now employs liaisons to help families connect with the right resources. But, the spending gap persists.<\/p>\n<p>Today, Sherry says her now 15-year-old son is happy. He attends Hamilton High School and communicates almost solely through a typing device. &#8220;This is the time in his life where those early treatments could have made a difference,&#8221; she laments.<\/p>\n<p><strong><a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/blockads.fivefilters.org\/\">Let&#8217;s block ads!<\/a><\/strong> <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/blockads.fivefilters.org\/acceptable.html\">(Why?)<\/a><\/p>\n<p>Source:: <a href=\"https:\/\/www.npr.org\/sections\/health-shots\/2018\/03\/19\/587249339\/black-and-latino-children-are-often-overlooked-when-it-comes-to-autism?utm_medium=RSS&amp;utm_campaign=healthcare\" class=\"colorbox\" title=\"Black And Latino Children Are Often Overlooked When It Comes To Autism\" rel=\"nofollow\">https:\/\/www.npr.org\/sections\/health-shots\/2018\/03\/19\/587249339\/black-and-latino-children-are-often-overlooked-when-it-comes-to-autism?utm_medium=RSS&amp;utm_campaign=healthcare<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<div class=\"ftpimagefix\" style=\"float:left\"><a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.npr.org\/sections\/health-shots\/2018\/03\/19\/587249339\/black-and-latino-children-are-often-overlooked-when-it-comes-to-autism?utm_medium=RSS&amp;utm_campaign=healthcare\"><img decoding=\"async\" width=\"150\" src=\"https:\/\/media.npr.org\/assets\/img\/2018\/03\/19\/autism-and-race_wide-49cd959c04211be1e41167f78015ed4a1d9bcada-s1100-c15.jpeg\" alt=\"Mounting research suggests that African-American and Latino children with autism are diagnosed late because of bias on the part of health care providers or a lack of information among patient families.\"><\/a><\/div>\n<div>\n<div>\n<div><a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/media.npr.org\/assets\/img\/2018\/03\/19\/autism-and-race_wide-49cd959c04211be1e41167f78015ed4a1d9bcada-s1200.jpeg\">Enlarge this image<\/a><\/div>\n<\/div>\n<div>\n<div>\n<div><\/div>\n<\/div>\n<p><span><\/p>\n<p>        Shannon Wright for NPR<\/p>\n<p>    <\/span><\/div>\n<\/div>\n<p>Sherry Alvarez says she knew there was something different about her son since he was about 9 months old. Back then Sherry says his pediatrician told her there was nothing to worry about, &#8221; &#8216;Boys are a little slower than girls, so let&#8217;s just wait until his second birthday.&#8217; &#8221; We aren&#8217;t using Sherry&#8217;s son&#8217;s name to protect his privacy.<\/p>\n<p>By her son&#8217;s second birthday, Sherry says she was getting desperate. She didn&#8217;t know why he wasn&#8217;t talking yet or showing affection like other kids. At 2 1\/2, he was referred to Children&#8217;s Hospital Los Angeles.<\/p>\n<p>There, after four hours of tests, Sherry says the doctor handed her a 20-page report explaining his autism spectrum disorder diagnosis, among others. She says she was paralyzed by emotion.<\/p>\n<p>ASD is a disease that affects people of all races and ethnicities, but <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/www.jaacap.com\/article\/S0890-8567(09)60739-5\/abstract\">research <\/a>shows that African-American and Latino children with autism are diagnosed at older ages than white children, giving them less of an opportunity for proper intervention and treatment.<\/p>\n<p>This is especially true of minimally verbal kids like Sherry&#8217;s son and there are many possible reasons for a late diagnosis. Some families face healthcare access issues and prohibitive costs for treatment, and some families just don&#8217;t know how important it is to get diagnosed to move on to the treatment phase. The dialog between doctors and minority families during the diagnosis process is critical.<\/p>\n<aside>\n<div><\/div>\n<\/aside>\n<p><a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.ncbi.nlm.nih.gov\/pubmed\/29100475\">A recent study<\/a> from Georgia State University found that African-American parents reported fewer concerns about behaviors like delayed speech and repetitive behaviors, even though their children showed a greater severity with these symptoms, overall. But, of course, it isn&#8217;t all up to parents.<\/p>\n<p>&#8220;There are very likely parent aspects of this and very likely clinician aspects of this,&#8221; says Meghan Rose Donohue, a lead researcher on the study. Perhaps families, like Sherry&#8217;s, don&#8217;t have the information necessary to really push physicians, but it is also possible that doctors don&#8217;t take these cases seriously enough from the beginning.<\/p>\n<p><!-- END ID=\"RES594922175\" CLASS=\"BUCKETWRAP INTERNALLINK INSETTWOCOLUMN INSET2COL \" --><\/p>\n<p>Families and doctors, alike, can mistake ASD for simple bad behavior, especially in boys, as research has shown over the past couple of decades. <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.ncbi.nlm.nih.gov\/pubmed\/11575603\">A 2001 study<\/a> at McGill University in Montreal found that doctors were more hesitant to diagnose ASD in minority families.<\/p>\n<p>In 2007, <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.ncbi.nlm.nih.gov\/pubmed\/17160456\">a study<\/a> by a team at the Center for Autism and Developmental Disabilities Research and Epidemiology, University of Pennsylvania, found that African-American children were 5.1 times more likely to be misdiagnosed with conduct disorders before being diagnosed with ASD.<\/p>\n<p>When Sherry was growing up, she had a cousin who the family thought of as &#8220;different,&#8221; she says. &#8220;He was basically hidden. We didn&#8217;t talk about it as a community.&#8221; He had autism. &#8220;We have to retrain ourselves. It&#8217;s not OK to hide our kids.&#8221;<\/p>\n<p><a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/www.dds.ca.gov\/RC\/\">Regional Centers<\/a> in Los Angeles, which offer services to the developmentally disabled, are now starting to look at the diagnosis disparity problem. Westside Regional Center in Culver City just received a grant from the state to look at how autism diagnosis disparities manifest within their intake and treatment programs.<\/p>\n<p>&#8220;We&#8217;ve implemented a series of trainings with intake counselors on cultural awareness and sensitivity, and we&#8217;re starting to have a lot of conversations about biases,&#8221; says Tom Kelly, Westside&#8217;s chief psychologist.<\/p>\n<p>One of the apparent biases among intake counselors at the center stems from the difference in the documentation that arrives with each new child. African-American families tend to arrive at the center with lots of documentation detailing behavior issues from their child&#8217;s school or social services. With all those official papers sitting in front of them, it&#8217;s much easier for a counselor to think &#8220;behavior disease&#8221; rather than &#8220;autism,&#8221; says Kelly.<\/p>\n<p><!-- END ID=\"RES594922899\" CLASS=\"BUCKETWRAP INTERNALLINK INSETTWOCOLUMN INSET2COL \" --><\/p>\n<p>And that disparity exists in dollars spent, as well. As reported in <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/issuu.com\/publiccounsel\/docs\/assuring_equitable_funding_of_servi?e=29495352\/49041713\">a 2017 survey<\/a>, South Central Regional Center spends $8,000 less per client than the Westside location and the racial disparity <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/www.calhealthreport.org\/2016\/12\/12\/marked-racial-disparities-in-money-spent-to-help-disabled\/\">persists statewide<\/a>.<\/p>\n<p>But there are more resources for minority families today than compared to when Sherry&#8217;s son was young. The Autism Society of Los Angeles runs a hotline to help parents navigate the diagnosis and healthcare landscape and Children&#8217;s Hospital Los Angeles now employs liaisons to help families connect with the right resources. But, the spending gap persists.<\/p>\n<p>Today, Sherry says her now 15-year-old son is happy. He attends Hamilton High School and communicates almost solely through a typing device. &#8220;This is the time in his life where those early treatments could have made a difference,&#8221; she laments.<\/p>\n<p><strong><a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/blockads.fivefilters.org\/\">Let&#8217;s block ads!<\/a><\/strong> <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/blockads.fivefilters.org\/acceptable.html\">(Why?)<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[47],"tags":[],"class_list":["post-15370","post","type-post","status-publish","format-standard","hentry","category-health"],"_links":{"self":[{"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/posts\/15370","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/comments?post=15370"}],"version-history":[{"count":0,"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/posts\/15370\/revisions"}],"wp:attachment":[{"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/media?parent=15370"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/categories?post=15370"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/tags?post=15370"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}