{"id":18262,"date":"2018-12-12T10:00:56","date_gmt":"2018-12-12T10:00:56","guid":{"rendered":"https:\/\/associatednews.us\/content\/2018\/12\/12\/former-nfl-player-tim-green-has-a-new-opponent-als-2\/"},"modified":"2018-12-12T10:00:56","modified_gmt":"2018-12-12T10:00:56","slug":"former-nfl-player-tim-green-has-a-new-opponent-als-2","status":"publish","type":"post","link":"https:\/\/associatednews.us\/content\/former-nfl-player-tim-green-has-a-new-opponent-als-2\/","title":{"rendered":"Former NFL Player Tim Green Has A New Opponent \u2014 ALS"},"content":{"rendered":"<p><span style=\"font-style:italic;font-size:16px\">By  <a class=\"colorbox\" href=\"https:\/\/www.npr.org\/2018\/12\/12\/675696565\/former-nfl-player-tim-green-has-a-new-opponent-als?utm_medium=RSS&amp;utm_campaign=sports\">Tom Goldman<\/a><\/span>  <\/p>\n<div class=\"ftpimagefix\" style=\"float:left\"><a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.npr.org\/2018\/12\/12\/675696565\/former-nfl-player-tim-green-has-a-new-opponent-als?utm_medium=RSS&amp;utm_campaign=sports\"><img decoding=\"async\" width=\"150\" src=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_34_slide-12604a28502ad996aa9ee7eda27d18d16838b898-s1100-c15.jpg\" alt><\/p>\n<div>\n            <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_34_slide-12604a28502ad996aa9ee7eda27d18d16838b898-s1200.jpg\"><\/a><\/div>\n<div>\n<div>\n<div>\n            <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_34_slide-12604a28502ad996aa9ee7eda27d18d16838b898-s1200.jpg\">Enlarge this image<\/a>\n        <\/div>\n<\/div>\n<div>\n<div>\n<div>\n<p>\n                Tim Green, former NFL player and a former NPR commentator, has ALS, also known as Lou Gehrig&#8217;s disease. Green believes football gave him the disease.<\/p>\n<p>                <b><\/p>\n<p>                    Heather Ainsworth for NPR<\/p>\n<p>                <\/b><br \/>\n                <b><b>hide caption<\/b><\/b>\n            <\/p>\n<\/p><\/div>\n<p>            <b><b>toggle caption<\/b><\/b>\n    <\/div>\n<p>    <span><\/p>\n<p>        Heather Ainsworth for NPR<\/p>\n<p>    <\/span>\n<\/div>\n<\/p><\/div>\n<p>Tim Green first noticed the symptoms about five years ago.<\/p>\n<p>The former NFL player, whose strength was a job requirement, suddenly found his hands weren&#8217;t strong enough to use a nail clipper. His words didn&#8217;t come out as fast as he was thinking them.<\/p>\n<p>&#8220;I&#8217;m a strange guy,&#8221; Tim says. &#8220;I get something in my head and I can just run with it. I was really afraid I had ALS. But there was enough doubt that I said &#8216;alright, I don&#8217;t. Let&#8217;s not talk about it. Let&#8217;s not do anything.'&#8221;<\/p>\n<p>Denying pain and injury had been a survival strategy in football.<\/p>\n<p>&#8220;I was well trained in that verse,&#8221; he says.<\/p>\n<div>\n<div>\n<div>\n    <img decoding=\"async\" src=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_09_slide-64ee4380f9e48a0e6961bfc146eec1fe69f70626-s1100-c15.jpg\" alt><\/p>\n<div>\n            <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_09_slide-64ee4380f9e48a0e6961bfc146eec1fe69f70626-s1200.jpg\">Enlarge this image<\/a>\n        <\/div>\n<\/div>\n<div>\n<div>\n<div>\n<p>\n                A Falcons game ball that was presented to Green in 1991.<\/p>\n<p>                <b><\/p>\n<p>                    Heather Ainsworth for NPR<\/p>\n<p>                <\/b><br \/>\n                <b><b>hide caption<\/b><\/b>\n            <\/p>\n<\/p><\/div>\n<p>            <b><b>toggle caption<\/b><\/b>\n    <\/div>\n<p>    <span><\/p>\n<p>        Heather Ainsworth for NPR<\/p>\n<p>    <\/span>\n<\/div>\n<\/p><\/div>\n<\/p><\/div>\n<p><!-- END CLASS=\"CONTAINER LARGE BTMBAR\" ID=\"CON675761979\" PREVIEWTITLE=\"TWO\" --><\/p>\n<p>But a diagnosis in 2016 made denial impossible. Doctors confirmed that Tim, also a former NPR commentator, had ALS, known as Lou Gehrig&#8217;s disease. The degenerative illness attacks the body&#8217;s motor nerve cells, weakening muscles in the arms and legs, and the muscles that control speech, swallowing and breathing.<\/p>\n<p>Tim tried to keep it private \u2014 he didn&#8217;t want people feeling sorry for him.<\/p>\n<aside>\n<div><\/div>\n<\/aside>\n<p>But he says, &#8220;I got to a point where I couldn&#8217;t hide it anymore.&#8221;<\/p>\n<p>So Tim <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.cbsnews.com\/news\/tim-green-coping-with-the-als-he-thinks-was-caused-nfl-atlanta-falcons-syracuse-football-60-minutes\/\">went on <em>60 Minutes<\/em><\/a> and revealed his illness.<\/p>\n<p>&#8220;What we said is, you either write your own history or someone&#8217;s going to write it for you,&#8221; says 24-year-old Troy Green.<\/p>\n<p><strong>When one isn&#8217;t enough<\/strong><\/p>\n<p>I was one of Tim Green&#8217;s producers for his <em>Morning Edition <\/em>commentaries back in the 1990s. We went to dinner once when he was in Washington, D.C. for a game \u2014 his Atlanta Falcons were playing Washington. Tim had a huge plate of pasta and when we finished, the waiter came over and asked &#8220;anything else?&#8221; Tim pointed to his clean plate and said, &#8220;yeah. Let&#8217;s do it again.&#8221;<\/p>\n<p>That was him. <em>On<\/em>e entr\u00e9e wasn&#8217;t enough. <em>One<\/em> high-profile career <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.thriftbooks.com\/a\/tim-green\/233469\/\">wasn&#8217;t enough<\/a> \u2013 he&#8217;s also a prolific author, has a law degree and works for two firms.<\/p>\n<p>And ultimately, it wasn&#8217;t enough for Tim to deal with ALS in silence. Last month, in conjunction with his <em>60 Minutes<\/em> appearance, Tim helped launch a fund-raising website, <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.tackleals.com\/\">Tackle ALS<\/a>.<\/p>\n<p><strong>Writing his own story<\/strong><\/p>\n<p>I recently visited Tim at his lakeside home in upstate New York, in the village of Skaneateles.<\/p>\n<p>We sat down in a room with a huge picture window that normally offers a gorgeous view of Skaneateles Lake. On the day I visited, all you could see was driving snow. Troy Green sat next to his dad \u2014 Tim&#8217;s speech is slow and raspy and sometimes Troy helps repeat or reinforce Tim&#8217;s words. During our talk, a tube connected to a port in Tim&#8217;s chest provided an infusion of Radicava. Last year, the FDA<a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.fda.gov\/newsevents\/newsroom\/pressannouncements\/ucm557102.htm\"> approved the new drug<\/a>, which has been shown to slow the progress of what&#8217;s currently a fatal disease.<\/p>\n<div>\n<div>\n    <img decoding=\"async\" src=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_01_slide-822c788cbfa850dfdc9666d93f597cf8f62703b8-s1100-c15.jpg\" alt><\/p>\n<div>\n            <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_01_slide-822c788cbfa850dfdc9666d93f597cf8f62703b8-s1200.jpg\">Enlarge this image<\/a>\n        <\/div>\n<\/div>\n<div>\n<div>\n<div>\n<p>\n                Green&#8217;s daughter-in-law, Jessica Green, gives him an infusion of Radicava. Last year, the FDA approved the new drug, which has been shown to slow the progress of what&#8217;s currently a fatal disease.<\/p>\n<p>                <b><\/p>\n<p>                    Heather Ainsworth for NPR<\/p>\n<p>                <\/b><br \/>\n                <b><b>hide caption<\/b><\/b>\n            <\/p>\n<\/p><\/div>\n<p>            <b><b>toggle caption<\/b><\/b>\n    <\/div>\n<p>    <span><\/p>\n<p>        Heather Ainsworth for NPR<\/p>\n<p>    <\/span>\n<\/div>\n<\/p><\/div>\n<p>The history Troy encouraged Tim to write is positive and hopeful. They stress that ALS can be cured, it&#8217;s just underfunded.<\/p>\n<p>The history certainly includes family. Tim and his wife Illyssa have been married for 29 years. They have five kids \u2014 all with first names starting with &#8220;T&#8221; \u2014 that&#8217;s Illyssa&#8217;s doing, Tim says. And the family is incredibly close. Literally.<\/p>\n<p><!-- END ID=\"RES675906195\" CLASS=\"BUCKETWRAP INTERNALLINK INSETTWOCOLUMN INSET2COL \" --><\/p>\n<p><!-- END ID=\"RES675906187\" CLASS=\"BUCKETWRAP INTERNALLINK INSETTWOCOLUMN INSET2COL \" --><\/p>\n<p>&#8220;My brother lives on the same lane as us. I&#8217;m their neighbor,&#8221; Troy says, adding, &#8220;my little sister&#8217;s at school, my little brother lives here and then my older sister lives the furthest away. She&#8217;s about a three minute drive.&#8221;<\/p>\n<p>&#8220;We&#8217;re going to reel her in,&#8221; Tim laughs.<\/p>\n<p><strong>Football, a complicated love<\/strong><\/p>\n<p>Of course, any Tim Green history has to include football.<\/p>\n<p>For better <em>and <\/em>worse.<\/p>\n<p>Tim believes football gave him the disease. His eight years in the NFL in the 1980s and 90s, as a defensive lineman and linebacker, were before protective rule changes and concussion protocols.<\/p>\n<p>There were &#8220;countless&#8221; head collisions, Tim says. I mention that he had decades of those collisions, from an early age through the NFL.<\/p>\n<p>&#8220;But in the NFL,&#8221; he says, &#8220;the violence and the impacts are extraordinary. Every day.&#8221;<\/p>\n<p>Troy adds, &#8220;when [Tim] played, practices were worse than the games. Because in the game, you typically would see 45 to 65 plays. In practice, you could run 100, 200 by the time you&#8217;re done with drills.&#8221;<\/p>\n<p>Researchers say repetitive head blows <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/alsadotorg.wordpress.com\/2017\/03\/22\/can-football-cause-als-a-look-at-the-research\/\">may play a part<\/a> in causing ALS. The recent NFL Concussion Settlement acknowledged a link by <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.latimes.com\/sports\/nfl\/la-sp-nfl-medical-payouts-20180808-story.html\">including payouts<\/a> to former players with the disease, including Tim.<\/p>\n<p><!-- END ID=\"RES675906126\" CLASS=\"BUCKETWRAP INTERNALLINK INSETTWOCOLUMN INSET2COL \" --><\/p>\n<p>His <em>Morning Edition<\/em> commentaries regularly took listeners inside the violent game. In 1992, <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/artemis.npr.org\/#\/doc\/cfb4f38c-4c9c-48ca-8b2a-6e232fcb714f?a=%7B%22bylines%22:%5B%22Tim%20Green%22%5D%7D&amp;d=&amp;f=&amp;b=&amp;p=6\">Tim wrote one <\/a>about about a teammate, former Atlanta defensive end Rick Bryan, who&#8217;d had enough of the physical toll and was retiring.<\/p>\n<p>The piece ended with this:<\/p>\n<blockquote>\n<div>\n<p>&#8220;Back at the locker room, I checked my protective neck padding and pumped some extra air into the padding of my helmet. Like a gypsy gazing into a crystal ball, I looked at my own distorted reflection in the glossy black surface of my helmet. The smile let me know I was glad to be there, but there was nothing I could see that told me how long it would last.&#8221;<\/p>\n<\/p><\/div>\n<\/blockquote>\n<div>\n<div>\n    <img decoding=\"async\" src=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_30_slide-2f6ecf1fda65b1fa9607baee974df13bbc8fd3ac-s1100-c15.jpg\" alt><\/p>\n<div>\n            <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_30_slide-2f6ecf1fda65b1fa9607baee974df13bbc8fd3ac-s1200.jpg\">Enlarge this image<\/a>\n        <\/div>\n<\/div>\n<div>\n<div>\n<div>\n<p>\n                Old uniforms and posters adorn the walls at Green&#8217;s home gym.<\/p>\n<p>                <b><\/p>\n<p>                    Heather Ainsworth for NPR<\/p>\n<p>                <\/b><br \/>\n                <b><b>hide caption<\/b><\/b>\n            <\/p>\n<\/p><\/div>\n<p>            <b><b>toggle caption<\/b><\/b>\n    <\/div>\n<p>    <span><\/p>\n<p>        Heather Ainsworth for NPR<\/p>\n<p>    <\/span>\n<\/div>\n<\/p><\/div>\n<p>Tim could articulate what many players couldn&#8217;t. Why, I asked him, with his insights, would he play a sport that had the potential to do permanent damage?<\/p>\n<p>Tim says as a kid, he had two passions. Writing and football. From the earliest age, he says, he worked incredibly hard to succeed at both, and he did.<\/p>\n<p>&#8220;I was just impassioned,&#8221; he says. &#8220;That&#8217;s what I wanted, and that&#8217;s what I got.&#8221;<\/p>\n<p>&#8220;If [this disease] is part of the bargain, I don&#8217;t know,&#8221; he continues. But back then, he says, he had &#8220;no idea&#8221; of the potential long-term damage of football. &#8220;So the temporary pain and discomfort, I knew that was worth it. Some pain in the future with my back, neck, knees, I knew that was worth it.&#8221;<\/p>\n<p>&#8220;Can I say getting ALS was worth it? I don&#8217;t know. I don&#8217;t know.&#8221;<\/p>\n<p>His ambivalence illustrates Tim&#8217;s profound and complicated love for the game. <em>Still. <\/em>He says it gave him the disease. But it also taught him so many life lessons growing up. It allowed him to vent anger and violence in an acceptable way.<\/p>\n<p>&#8220;I&#8217;m not indicting football or the NFL,&#8221; he says.<\/p>\n<p>He passed on his love \u2013 his two oldest sons played football. His 12-year-old, Ty, plays now. And it has split the close-knit Greens. Illyssa doesn&#8217;t like it. Tim says he wants Ty to play if he <em>wants<\/em> to.<\/p>\n<div>\n<div>\n    <img decoding=\"async\" src=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_40_slide-b043169426b5224cc3f00e4d446936e76c6899df-s1100-c15.jpg\" alt><\/p>\n<div>\n            <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_40_slide-b043169426b5224cc3f00e4d446936e76c6899df-s1200.jpg\">Enlarge this image<\/a>\n        <\/div>\n<\/div>\n<div>\n<div>\n<div>\n<p>\n                Troy Green helps his father on the computer. Tim can&#8217;t type, so he has a sensor on his glasses that highlights letters. Then he clicks a mouse with his right hand, and the letters show up on his laptop screen.<\/p>\n<p>                <b><\/p>\n<p>                    Heather Ainsworth for NPR<\/p>\n<p>                <\/b><br \/>\n                <b><b>hide caption<\/b><\/b>\n            <\/p>\n<\/p><\/div>\n<p>            <b><b>toggle caption<\/b><\/b>\n    <\/div>\n<p>    <span><\/p>\n<p>        Heather Ainsworth for NPR<\/p>\n<p>    <\/span>\n<\/div>\n<\/p><\/div>\n<p>Tim and Troy say the game now is different than it was. It&#8217;s much safer with less contact in practice. Both of them coached Ty&#8217;s junior team.<\/p>\n<p>&#8220;We trained [so in] every tackling drill your head&#8217;s out of the play,&#8221; says Troy. &#8220;In practice we would penalize our players if they had their head in the drill. We really just encouraged the modern day football, not the 1980&#8217;s edition.&#8221;<\/p>\n<p>Still, football is inherently dangerous, and so far Ty wants to play.<\/p>\n<p>&#8220;I don&#8217;t want to wrap him up in a bubble,&#8221; says Tim, &#8220;because where do you stop?&#8221;<\/p>\n<p>But there&#8217;s a deeper, more complex reason behind Tim&#8217;s support. Troy says his dad doesn&#8217;t want the illness to be a burden on anyone. So Tim doesn&#8217;t want Ty <em>not<\/em> to play, just because the game hurt him.<\/p>\n<p><strong>Translating science into treatment<\/strong><\/p>\n<p>&#8220;I do want to point out that most people who play football don&#8217;t develop ALS.&#8221;<\/p>\n<p>So says Dr. Merit Cudkowicz, who treats Tim&#8217;s disease. Cudkowicz has researched ALS for nearly 25 years. She thinks football probably is a factor that led to his illness, but not the only one. The studies so far haven&#8217;t established a direct cause and effect.<\/p>\n<p>&#8220;And that&#8217;s why we think there&#8217;s something else,&#8221; Cudkowicz says. &#8220;It&#8217;s a combination perhaps in someone&#8217;s immune system or something in their genetics that makes it more likely that if you also hit your head repetitively that you might come down with the disease.&#8221;<\/p>\n<div>\n<div>\n    <img decoding=\"async\" src=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_26_slide-144519dbb7fe0f4ed8bdecb953035e2bafe3a5b0-s1100-c15.jpg\" alt><\/p>\n<div>\n            <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_26_slide-144519dbb7fe0f4ed8bdecb953035e2bafe3a5b0-s1200.jpg\">Enlarge this image<\/a>\n        <\/div>\n<\/div>\n<div>\n<div>\n<div>\n<p>\n                Green works out at his home gym. Studies of ALS patients suggest people who do stretching and toning function much better. There&#8217;s a concern if a patient does too much and tries to bulk up, he or she could tear the muscles.  Green&#8217;s doctor advises more low weight, repetition, toning types of exercise.<\/p>\n<p>                <b><\/p>\n<p>                    Heather Ainsworth for NPR<\/p>\n<p>                <\/b><br \/>\n                <b><b>hide caption<\/b><\/b>\n            <\/p>\n<\/p><\/div>\n<p>            <b><b>toggle caption<\/b><\/b>\n    <\/div>\n<p>    <span><\/p>\n<p>        Heather Ainsworth for NPR<\/p>\n<p>    <\/span>\n<\/div>\n<\/p><\/div>\n<p>Cudkowicz directs the Healey Center for ALS at Massachusetts General Hospital in Boston. She says Tim&#8217;s and other prominent people&#8217;s involvement and publicity present a great opportunity, as a follow up to the viral ice bucket challenges that <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.npr.org\/sections\/health-shots\/2014\/08\/27\/343733139\/life-after-ice-buckets-als-group-faces-94-million-challenge\">raised money for ALS<\/a> a few years ago.<\/p>\n<p>&#8220;Absolutely I think this is a huge next step,&#8221; Cudkowicz says. &#8220;The ice bucket challenge came at the right time. The science was exploding but there were no resources for it. And suddenly there&#8217;s this $220 million resource for ALS and it fed this great science and drew in all these new people and new companies for the field.&#8221;<\/p>\n<p>&#8220;But there&#8217;s still a [funding] gap in getting that great science to patients. And that&#8217;s where Tim&#8217;s Tackle ALS initiative and the Healey Center are going to partner and hopefully with many other groups, translate that great science into treatment for people.&#8221;<\/p>\n<p><strong>&#8220;If you have a good life, it&#8217;s never long enough&#8221;<\/strong><\/p>\n<p>Later, on the day I visited, Tim sat down at a desk in a large wood-paneled den, indulging his other passion in life \u2014 writing.<\/p>\n<p>He can&#8217;t type, so he has a sensor on his glasses that highlights letters. Then he clicks a mouse and the letters show up on his laptop screen. He&#8217;s working on a kid&#8217;s baseball book. It&#8217;s a third collaboration with former New York Yankees star Derek Jeter and Tim says they both provide specific areas of expertise. Jeter brings baseball realism to the book; Tim draws on his many years of being surrounded by young people. Disgusting young people, he laughs.<\/p>\n<div>\n<div>\n<div>\n    <img decoding=\"async\" src=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_12_slide-2e1da51f922d248ab7c2aaa7e101aaed2e8e2141-s1100-c15.jpg\" alt><\/p>\n<div>\n            <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_12_slide-2e1da51f922d248ab7c2aaa7e101aaed2e8e2141-s1200.jpg\">Enlarge this image<\/a>\n        <\/div>\n<\/div>\n<div>\n<div>\n<div>\n<p>\n                Green writes by clicking this mouse after a sensor on his eyeglasses has located letters.  He clicks one letter at a time.<\/p>\n<p>                <b><\/p>\n<p>                    Heather Ainsworth for NPR<\/p>\n<p>                <\/b><br \/>\n                <b><b>hide caption<\/b><\/b>\n            <\/p>\n<\/p><\/div>\n<p>            <b><b>toggle caption<\/b><\/b>\n    <\/div>\n<p>    <span><\/p>\n<p>        Heather Ainsworth for NPR<\/p>\n<p>    <\/span>\n<\/div>\n<\/p><\/div>\n<\/p><\/div>\n<p><!-- END CLASS=\"CONTAINER LARGE BTMBAR\" ID=\"CON675762510\" PREVIEWTITLE=\"THREE\" --><\/p>\n<p>&#8220;These are kids 10 to 14 years old. Tweens,&#8221; he says. &#8220;They think vomit is funny. [So] somebody has to throw up [in the book], and it&#8217;s best when they throw up <em>on <\/em>someone.&#8221;<\/p>\n<p>&#8220;Writing [these scenes] is easy. It&#8217;s convincing Derek to keep them is where I earn my money.&#8221;<\/p>\n<p>On cue, Troy looks up from his phone and makes an announcement.<\/p>\n<p>&#8220;Just got an email that Jeter, and [his] Turn 2 Foundation donated $10,000 [to Tackle ALS]. His ears are ringing,&#8221; Troy says, laughing. &#8220;He heard about the vomit scenes!&#8221;<\/p>\n<p>Tim says the fundraising is a chance to help others. He says he&#8217;s one of the lucky people with the disease. It&#8217;s relatively slow moving.<\/p>\n<div>\n<div>\n<div>\n    <img decoding=\"async\" src=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_14_slide-70b8d6d8be78f16dd5ca7f257bf85481c02976c4-s1100-c15.jpg\" alt><\/p>\n<div>\n            <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_14_slide-70b8d6d8be78f16dd5ca7f257bf85481c02976c4-s1200.jpg\">Enlarge this image<\/a>\n        <\/div>\n<\/div>\n<div>\n<div>\n<div>\n<p>\n                Green hugs his 12-year-old son, Ty. Green coaches Ty in football and insists his son is playing a much safer game than his father did in the 1980s and 90s. Still, Green and his wife disagree about Ty&#8217;s participation. Illyssa Green doesn&#8217;t want her son playing; Tim supports it as long as Ty wants to play.<\/p>\n<p>                <b><\/p>\n<p>                    Heather Ainsworth for NPR<\/p>\n<p>                <\/b><br \/>\n                <b><b>hide caption<\/b><\/b>\n            <\/p>\n<\/p><\/div>\n<p>            <b><b>toggle caption<\/b><\/b>\n    <\/div>\n<p>    <span><\/p>\n<p>        Heather Ainsworth for NPR<\/p>\n<p>    <\/span>\n<\/div>\n<\/p><\/div>\n<\/p><\/div>\n<p><!-- END CLASS=\"CONTAINER LARGE BTMBAR\" ID=\"CON675773405\" PREVIEWTITLE=\"FIVE\" --><\/p>\n<p>I ask Tim what keeps him positive through this time. He answers by recounting a period 12 years ago, when Illyssa was diagnosed with cancer.<\/p>\n<p>&#8220;She was out of her mind,&#8221; Tim says, &#8220;and I remember saying to her, you&#8217;ve got great doctors, we&#8217;re gonna beat this and do everything we can. But in the meantime, I don&#8217;t want you to wallow in fear and anxiety and misery. I said, because we have a very good life and if you have a good life &#8230; and a lot of people do, maybe they don&#8217;t realize it, but they do&#8230; but if you have a good life, it&#8217;s never long enough. We all know it&#8217;s finite.&#8221;<\/p>\n<p>&#8220;So whenever the end point is, I ask to be strong enough to maintain that positive attitude no matter what the challenges are.&#8221;<\/p>\n<p>Today, Illyssa is cancer free. And it&#8217;s Tim trying to live by his own advice.<\/p>\n<p>As I leave, I stop to look at two large sculptures outside their house. One is of five kids, playing. The other is a lone figure. A helmeted football player, running and catching a pass over the shoulder. Tim says it&#8217;s an homage to the game, that let him &#8220;buy this amazing property and build a comfortable home.&#8221;<\/p>\n<p>A home, and family, that now mean even more than they have all along.<\/p>\n<div>\n<div>\n    <img decoding=\"async\" src=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_37_slide-568efeda48bcf6c47936cc6731ec71b3228b35c2-s1100-c15.jpg\" alt><\/p>\n<div>\n            <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_37_slide-568efeda48bcf6c47936cc6731ec71b3228b35c2-s1200.jpg\">Enlarge this image<\/a>\n        <\/div>\n<\/div>\n<div>\n<div>\n<div>\n<p>\n                A statue of a helmeted football player, running and catching a pass over the shoulder. Tim says it&#8217;s an homage to the game, that let him &#8220;buy this amazing property and build a comfortable home.&#8221;<\/p>\n<p>                <b><\/p>\n<p>                    Heather Ainsworth for NPR<\/p>\n<p>                <\/b><br \/>\n                <b><b>hide caption<\/b><\/b>\n            <\/p>\n<\/p><\/div>\n<p>            <b><b>toggle caption<\/b><\/b>\n    <\/div>\n<p>    <span><\/p>\n<p>        Heather Ainsworth for NPR<\/p>\n<p>    <\/span>\n<\/div>\n<\/p><\/div>\n<p><strong><a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/blockads.fivefilters.org\/\">Let&#8217;s block ads!<\/a><\/strong> <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/blockads.fivefilters.org\/acceptable.html\">(Why?)<\/a><\/p>\n<p>Source:: <a href=\"https:\/\/www.npr.org\/2018\/12\/12\/675696565\/former-nfl-player-tim-green-has-a-new-opponent-als?utm_medium=RSS&amp;utm_campaign=sports\" class=\"colorbox\" title=\"Former NFL Player Tim Green Has A New Opponent \u2014 ALS\" rel=\"nofollow\">https:\/\/www.npr.org\/2018\/12\/12\/675696565\/former-nfl-player-tim-green-has-a-new-opponent-als?utm_medium=RSS&amp;utm_campaign=sports<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<div class=\"ftpimagefix\" style=\"float:left\"><a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.npr.org\/2018\/12\/12\/675696565\/former-nfl-player-tim-green-has-a-new-opponent-als?utm_medium=RSS&amp;utm_campaign=sports\"><img decoding=\"async\" width=\"150\" src=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_34_slide-12604a28502ad996aa9ee7eda27d18d16838b898-s1100-c15.jpg\" alt><\/p>\n<div>\n            <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_34_slide-12604a28502ad996aa9ee7eda27d18d16838b898-s1200.jpg\"><\/a><\/div>\n<div>\n<div>\n<div>\n            <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_34_slide-12604a28502ad996aa9ee7eda27d18d16838b898-s1200.jpg\">Enlarge this image<\/a>\n        <\/div>\n<\/div>\n<div>\n<div>\n<div>\n<p>\n                Tim Green, former NFL player and a former NPR commentator, has ALS, also known as Lou Gehrig&#8217;s disease. Green believes football gave him the disease.<\/p>\n<p>                <b><\/p>\n<p>                    Heather Ainsworth for NPR<\/p>\n<p>                <\/b><br \/>\n                <b><b>hide caption<\/b><\/b>\n            <\/p>\n<\/p><\/div>\n<p>            <b><b>toggle caption<\/b><\/b>\n    <\/div>\n<p>    <span><\/p>\n<p>        Heather Ainsworth for NPR<\/p>\n<p>    <\/span>\n<\/div>\n<\/p><\/div>\n<p>Tim Green first noticed the symptoms about five years ago.<\/p>\n<p>The former NFL player, whose strength was a job requirement, suddenly found his hands weren&#8217;t strong enough to use a nail clipper. His words didn&#8217;t come out as fast as he was thinking them.<\/p>\n<p>&#8220;I&#8217;m a strange guy,&#8221; Tim says. &#8220;I get something in my head and I can just run with it. I was really afraid I had ALS. But there was enough doubt that I said &#8216;alright, I don&#8217;t. Let&#8217;s not talk about it. Let&#8217;s not do anything.'&#8221;<\/p>\n<p>Denying pain and injury had been a survival strategy in football.<\/p>\n<p>&#8220;I was well trained in that verse,&#8221; he says.<\/p>\n<div>\n<div>\n<div>\n    <img decoding=\"async\" src=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_09_slide-64ee4380f9e48a0e6961bfc146eec1fe69f70626-s1100-c15.jpg\" alt><\/p>\n<div>\n            <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_09_slide-64ee4380f9e48a0e6961bfc146eec1fe69f70626-s1200.jpg\">Enlarge this image<\/a>\n        <\/div>\n<\/div>\n<div>\n<div>\n<div>\n<p>\n                A Falcons game ball that was presented to Green in 1991.<\/p>\n<p>                <b><\/p>\n<p>                    Heather Ainsworth for NPR<\/p>\n<p>                <\/b><br \/>\n                <b><b>hide caption<\/b><\/b>\n            <\/p>\n<\/p><\/div>\n<p>            <b><b>toggle caption<\/b><\/b>\n    <\/div>\n<p>    <span><\/p>\n<p>        Heather Ainsworth for NPR<\/p>\n<p>    <\/span>\n<\/div>\n<\/p><\/div>\n<\/p><\/div>\n<p><!-- END CLASS=\"CONTAINER LARGE BTMBAR\" ID=\"CON675761979\" PREVIEWTITLE=\"TWO\" --><\/p>\n<p>But a diagnosis in 2016 made denial impossible. Doctors confirmed that Tim, also a former NPR commentator, had ALS, known as Lou Gehrig&#8217;s disease. The degenerative illness attacks the body&#8217;s motor nerve cells, weakening muscles in the arms and legs, and the muscles that control speech, swallowing and breathing.<\/p>\n<p>Tim tried to keep it private \u2014 he didn&#8217;t want people feeling sorry for him.<\/p>\n<aside>\n<div><\/div>\n<\/aside>\n<p>But he says, &#8220;I got to a point where I couldn&#8217;t hide it anymore.&#8221;<\/p>\n<p>So Tim <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.cbsnews.com\/news\/tim-green-coping-with-the-als-he-thinks-was-caused-nfl-atlanta-falcons-syracuse-football-60-minutes\/\">went on <em>60 Minutes<\/em><\/a> and revealed his illness.<\/p>\n<p>&#8220;What we said is, you either write your own history or someone&#8217;s going to write it for you,&#8221; says 24-year-old Troy Green.<\/p>\n<p><strong>When one isn&#8217;t enough<\/strong><\/p>\n<p>I was one of Tim Green&#8217;s producers for his <em>Morning Edition <\/em>commentaries back in the 1990s. We went to dinner once when he was in Washington, D.C. for a game \u2014 his Atlanta Falcons were playing Washington. Tim had a huge plate of pasta and when we finished, the waiter came over and asked &#8220;anything else?&#8221; Tim pointed to his clean plate and said, &#8220;yeah. Let&#8217;s do it again.&#8221;<\/p>\n<p>That was him. <em>On<\/em>e entr\u00e9e wasn&#8217;t enough. <em>One<\/em> high-profile career <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.thriftbooks.com\/a\/tim-green\/233469\/\">wasn&#8217;t enough<\/a> \u2013 he&#8217;s also a prolific author, has a law degree and works for two firms.<\/p>\n<p>And ultimately, it wasn&#8217;t enough for Tim to deal with ALS in silence. Last month, in conjunction with his <em>60 Minutes<\/em> appearance, Tim helped launch a fund-raising website, <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.tackleals.com\/\">Tackle ALS<\/a>.<\/p>\n<p><strong>Writing his own story<\/strong><\/p>\n<p>I recently visited Tim at his lakeside home in upstate New York, in the village of Skaneateles.<\/p>\n<p>We sat down in a room with a huge picture window that normally offers a gorgeous view of Skaneateles Lake. On the day I visited, all you could see was driving snow. Troy Green sat next to his dad \u2014 Tim&#8217;s speech is slow and raspy and sometimes Troy helps repeat or reinforce Tim&#8217;s words. During our talk, a tube connected to a port in Tim&#8217;s chest provided an infusion of Radicava. Last year, the FDA<a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.fda.gov\/newsevents\/newsroom\/pressannouncements\/ucm557102.htm\"> approved the new drug<\/a>, which has been shown to slow the progress of what&#8217;s currently a fatal disease.<\/p>\n<div>\n<div>\n    <img decoding=\"async\" src=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_01_slide-822c788cbfa850dfdc9666d93f597cf8f62703b8-s1100-c15.jpg\" alt><\/p>\n<div>\n            <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_01_slide-822c788cbfa850dfdc9666d93f597cf8f62703b8-s1200.jpg\">Enlarge this image<\/a>\n        <\/div>\n<\/div>\n<div>\n<div>\n<div>\n<p>\n                Green&#8217;s daughter-in-law, Jessica Green, gives him an infusion of Radicava. Last year, the FDA approved the new drug, which has been shown to slow the progress of what&#8217;s currently a fatal disease.<\/p>\n<p>                <b><\/p>\n<p>                    Heather Ainsworth for NPR<\/p>\n<p>                <\/b><br \/>\n                <b><b>hide caption<\/b><\/b>\n            <\/p>\n<\/p><\/div>\n<p>            <b><b>toggle caption<\/b><\/b>\n    <\/div>\n<p>    <span><\/p>\n<p>        Heather Ainsworth for NPR<\/p>\n<p>    <\/span>\n<\/div>\n<\/p><\/div>\n<p>The history Troy encouraged Tim to write is positive and hopeful. They stress that ALS can be cured, it&#8217;s just underfunded.<\/p>\n<p>The history certainly includes family. Tim and his wife Illyssa have been married for 29 years. They have five kids \u2014 all with first names starting with &#8220;T&#8221; \u2014 that&#8217;s Illyssa&#8217;s doing, Tim says. And the family is incredibly close. Literally.<\/p>\n<p><!-- END ID=\"RES675906195\" CLASS=\"BUCKETWRAP INTERNALLINK INSETTWOCOLUMN INSET2COL \" --><\/p>\n<p><!-- END ID=\"RES675906187\" CLASS=\"BUCKETWRAP INTERNALLINK INSETTWOCOLUMN INSET2COL \" --><\/p>\n<p>&#8220;My brother lives on the same lane as us. I&#8217;m their neighbor,&#8221; Troy says, adding, &#8220;my little sister&#8217;s at school, my little brother lives here and then my older sister lives the furthest away. She&#8217;s about a three minute drive.&#8221;<\/p>\n<p>&#8220;We&#8217;re going to reel her in,&#8221; Tim laughs.<\/p>\n<p><strong>Football, a complicated love<\/strong><\/p>\n<p>Of course, any Tim Green history has to include football.<\/p>\n<p>For better <em>and <\/em>worse.<\/p>\n<p>Tim believes football gave him the disease. His eight years in the NFL in the 1980s and 90s, as a defensive lineman and linebacker, were before protective rule changes and concussion protocols.<\/p>\n<p>There were &#8220;countless&#8221; head collisions, Tim says. I mention that he had decades of those collisions, from an early age through the NFL.<\/p>\n<p>&#8220;But in the NFL,&#8221; he says, &#8220;the violence and the impacts are extraordinary. Every day.&#8221;<\/p>\n<p>Troy adds, &#8220;when [Tim] played, practices were worse than the games. Because in the game, you typically would see 45 to 65 plays. In practice, you could run 100, 200 by the time you&#8217;re done with drills.&#8221;<\/p>\n<p>Researchers say repetitive head blows <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/alsadotorg.wordpress.com\/2017\/03\/22\/can-football-cause-als-a-look-at-the-research\/\">may play a part<\/a> in causing ALS. The recent NFL Concussion Settlement acknowledged a link by <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.latimes.com\/sports\/nfl\/la-sp-nfl-medical-payouts-20180808-story.html\">including payouts<\/a> to former players with the disease, including Tim.<\/p>\n<p><!-- END ID=\"RES675906126\" CLASS=\"BUCKETWRAP INTERNALLINK INSETTWOCOLUMN INSET2COL \" --><\/p>\n<p>His <em>Morning Edition<\/em> commentaries regularly took listeners inside the violent game. In 1992, <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/artemis.npr.org\/#\/doc\/cfb4f38c-4c9c-48ca-8b2a-6e232fcb714f?a=%7B%22bylines%22:%5B%22Tim%20Green%22%5D%7D&amp;d=&amp;f=&amp;b=&amp;p=6\">Tim wrote one <\/a>about about a teammate, former Atlanta defensive end Rick Bryan, who&#8217;d had enough of the physical toll and was retiring.<\/p>\n<p>The piece ended with this:<\/p>\n<blockquote>\n<div>\n<p>&#8220;Back at the locker room, I checked my protective neck padding and pumped some extra air into the padding of my helmet. Like a gypsy gazing into a crystal ball, I looked at my own distorted reflection in the glossy black surface of my helmet. The smile let me know I was glad to be there, but there was nothing I could see that told me how long it would last.&#8221;<\/p>\n<\/p><\/div>\n<\/blockquote>\n<div>\n<div>\n    <img decoding=\"async\" src=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_30_slide-2f6ecf1fda65b1fa9607baee974df13bbc8fd3ac-s1100-c15.jpg\" alt><\/p>\n<div>\n            <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_30_slide-2f6ecf1fda65b1fa9607baee974df13bbc8fd3ac-s1200.jpg\">Enlarge this image<\/a>\n        <\/div>\n<\/div>\n<div>\n<div>\n<div>\n<p>\n                Old uniforms and posters adorn the walls at Green&#8217;s home gym.<\/p>\n<p>                <b><\/p>\n<p>                    Heather Ainsworth for NPR<\/p>\n<p>                <\/b><br \/>\n                <b><b>hide caption<\/b><\/b>\n            <\/p>\n<\/p><\/div>\n<p>            <b><b>toggle caption<\/b><\/b>\n    <\/div>\n<p>    <span><\/p>\n<p>        Heather Ainsworth for NPR<\/p>\n<p>    <\/span>\n<\/div>\n<\/p><\/div>\n<p>Tim could articulate what many players couldn&#8217;t. Why, I asked him, with his insights, would he play a sport that had the potential to do permanent damage?<\/p>\n<p>Tim says as a kid, he had two passions. Writing and football. From the earliest age, he says, he worked incredibly hard to succeed at both, and he did.<\/p>\n<p>&#8220;I was just impassioned,&#8221; he says. &#8220;That&#8217;s what I wanted, and that&#8217;s what I got.&#8221;<\/p>\n<p>&#8220;If [this disease] is part of the bargain, I don&#8217;t know,&#8221; he continues. But back then, he says, he had &#8220;no idea&#8221; of the potential long-term damage of football. &#8220;So the temporary pain and discomfort, I knew that was worth it. Some pain in the future with my back, neck, knees, I knew that was worth it.&#8221;<\/p>\n<p>&#8220;Can I say getting ALS was worth it? I don&#8217;t know. I don&#8217;t know.&#8221;<\/p>\n<p>His ambivalence illustrates Tim&#8217;s profound and complicated love for the game. <em>Still. <\/em>He says it gave him the disease. But it also taught him so many life lessons growing up. It allowed him to vent anger and violence in an acceptable way.<\/p>\n<p>&#8220;I&#8217;m not indicting football or the NFL,&#8221; he says.<\/p>\n<p>He passed on his love \u2013 his two oldest sons played football. His 12-year-old, Ty, plays now. And it has split the close-knit Greens. Illyssa doesn&#8217;t like it. Tim says he wants Ty to play if he <em>wants<\/em> to.<\/p>\n<div>\n<div>\n    <img decoding=\"async\" src=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_40_slide-b043169426b5224cc3f00e4d446936e76c6899df-s1100-c15.jpg\" alt><\/p>\n<div>\n            <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_40_slide-b043169426b5224cc3f00e4d446936e76c6899df-s1200.jpg\">Enlarge this image<\/a>\n        <\/div>\n<\/div>\n<div>\n<div>\n<div>\n<p>\n                Troy Green helps his father on the computer. Tim can&#8217;t type, so he has a sensor on his glasses that highlights letters. Then he clicks a mouse with his right hand, and the letters show up on his laptop screen.<\/p>\n<p>                <b><\/p>\n<p>                    Heather Ainsworth for NPR<\/p>\n<p>                <\/b><br \/>\n                <b><b>hide caption<\/b><\/b>\n            <\/p>\n<\/p><\/div>\n<p>            <b><b>toggle caption<\/b><\/b>\n    <\/div>\n<p>    <span><\/p>\n<p>        Heather Ainsworth for NPR<\/p>\n<p>    <\/span>\n<\/div>\n<\/p><\/div>\n<p>Tim and Troy say the game now is different than it was. It&#8217;s much safer with less contact in practice. Both of them coached Ty&#8217;s junior team.<\/p>\n<p>&#8220;We trained [so in] every tackling drill your head&#8217;s out of the play,&#8221; says Troy. &#8220;In practice we would penalize our players if they had their head in the drill. We really just encouraged the modern day football, not the 1980&#8217;s edition.&#8221;<\/p>\n<p>Still, football is inherently dangerous, and so far Ty wants to play.<\/p>\n<p>&#8220;I don&#8217;t want to wrap him up in a bubble,&#8221; says Tim, &#8220;because where do you stop?&#8221;<\/p>\n<p>But there&#8217;s a deeper, more complex reason behind Tim&#8217;s support. Troy says his dad doesn&#8217;t want the illness to be a burden on anyone. So Tim doesn&#8217;t want Ty <em>not<\/em> to play, just because the game hurt him.<\/p>\n<p><strong>Translating science into treatment<\/strong><\/p>\n<p>&#8220;I do want to point out that most people who play football don&#8217;t develop ALS.&#8221;<\/p>\n<p>So says Dr. Merit Cudkowicz, who treats Tim&#8217;s disease. Cudkowicz has researched ALS for nearly 25 years. She thinks football probably is a factor that led to his illness, but not the only one. The studies so far haven&#8217;t established a direct cause and effect.<\/p>\n<p>&#8220;And that&#8217;s why we think there&#8217;s something else,&#8221; Cudkowicz says. &#8220;It&#8217;s a combination perhaps in someone&#8217;s immune system or something in their genetics that makes it more likely that if you also hit your head repetitively that you might come down with the disease.&#8221;<\/p>\n<div>\n<div>\n    <img decoding=\"async\" src=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_26_slide-144519dbb7fe0f4ed8bdecb953035e2bafe3a5b0-s1100-c15.jpg\" alt><\/p>\n<div>\n            <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_26_slide-144519dbb7fe0f4ed8bdecb953035e2bafe3a5b0-s1200.jpg\">Enlarge this image<\/a>\n        <\/div>\n<\/div>\n<div>\n<div>\n<div>\n<p>\n                Green works out at his home gym. Studies of ALS patients suggest people who do stretching and toning function much better. There&#8217;s a concern if a patient does too much and tries to bulk up, he or she could tear the muscles.  Green&#8217;s doctor advises more low weight, repetition, toning types of exercise.<\/p>\n<p>                <b><\/p>\n<p>                    Heather Ainsworth for NPR<\/p>\n<p>                <\/b><br \/>\n                <b><b>hide caption<\/b><\/b>\n            <\/p>\n<\/p><\/div>\n<p>            <b><b>toggle caption<\/b><\/b>\n    <\/div>\n<p>    <span><\/p>\n<p>        Heather Ainsworth for NPR<\/p>\n<p>    <\/span>\n<\/div>\n<\/p><\/div>\n<p>Cudkowicz directs the Healey Center for ALS at Massachusetts General Hospital in Boston. She says Tim&#8217;s and other prominent people&#8217;s involvement and publicity present a great opportunity, as a follow up to the viral ice bucket challenges that <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.npr.org\/sections\/health-shots\/2014\/08\/27\/343733139\/life-after-ice-buckets-als-group-faces-94-million-challenge\">raised money for ALS<\/a> a few years ago.<\/p>\n<p>&#8220;Absolutely I think this is a huge next step,&#8221; Cudkowicz says. &#8220;The ice bucket challenge came at the right time. The science was exploding but there were no resources for it. And suddenly there&#8217;s this $220 million resource for ALS and it fed this great science and drew in all these new people and new companies for the field.&#8221;<\/p>\n<p>&#8220;But there&#8217;s still a [funding] gap in getting that great science to patients. And that&#8217;s where Tim&#8217;s Tackle ALS initiative and the Healey Center are going to partner and hopefully with many other groups, translate that great science into treatment for people.&#8221;<\/p>\n<p><strong>&#8220;If you have a good life, it&#8217;s never long enough&#8221;<\/strong><\/p>\n<p>Later, on the day I visited, Tim sat down at a desk in a large wood-paneled den, indulging his other passion in life \u2014 writing.<\/p>\n<p>He can&#8217;t type, so he has a sensor on his glasses that highlights letters. Then he clicks a mouse and the letters show up on his laptop screen. He&#8217;s working on a kid&#8217;s baseball book. It&#8217;s a third collaboration with former New York Yankees star Derek Jeter and Tim says they both provide specific areas of expertise. Jeter brings baseball realism to the book; Tim draws on his many years of being surrounded by young people. Disgusting young people, he laughs.<\/p>\n<div>\n<div>\n<div>\n    <img decoding=\"async\" src=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_12_slide-2e1da51f922d248ab7c2aaa7e101aaed2e8e2141-s1100-c15.jpg\" alt><\/p>\n<div>\n            <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_12_slide-2e1da51f922d248ab7c2aaa7e101aaed2e8e2141-s1200.jpg\">Enlarge this image<\/a>\n        <\/div>\n<\/div>\n<div>\n<div>\n<div>\n<p>\n                Green writes by clicking this mouse after a sensor on his eyeglasses has located letters.  He clicks one letter at a time.<\/p>\n<p>                <b><\/p>\n<p>                    Heather Ainsworth for NPR<\/p>\n<p>                <\/b><br \/>\n                <b><b>hide caption<\/b><\/b>\n            <\/p>\n<\/p><\/div>\n<p>            <b><b>toggle caption<\/b><\/b>\n    <\/div>\n<p>    <span><\/p>\n<p>        Heather Ainsworth for NPR<\/p>\n<p>    <\/span>\n<\/div>\n<\/p><\/div>\n<\/p><\/div>\n<p><!-- END CLASS=\"CONTAINER LARGE BTMBAR\" ID=\"CON675762510\" PREVIEWTITLE=\"THREE\" --><\/p>\n<p>&#8220;These are kids 10 to 14 years old. Tweens,&#8221; he says. &#8220;They think vomit is funny. [So] somebody has to throw up [in the book], and it&#8217;s best when they throw up <em>on <\/em>someone.&#8221;<\/p>\n<p>&#8220;Writing [these scenes] is easy. It&#8217;s convincing Derek to keep them is where I earn my money.&#8221;<\/p>\n<p>On cue, Troy looks up from his phone and makes an announcement.<\/p>\n<p>&#8220;Just got an email that Jeter, and [his] Turn 2 Foundation donated $10,000 [to Tackle ALS]. His ears are ringing,&#8221; Troy says, laughing. &#8220;He heard about the vomit scenes!&#8221;<\/p>\n<p>Tim says the fundraising is a chance to help others. He says he&#8217;s one of the lucky people with the disease. It&#8217;s relatively slow moving.<\/p>\n<div>\n<div>\n<div>\n    <img decoding=\"async\" src=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_14_slide-70b8d6d8be78f16dd5ca7f257bf85481c02976c4-s1100-c15.jpg\" alt><\/p>\n<div>\n            <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_14_slide-70b8d6d8be78f16dd5ca7f257bf85481c02976c4-s1200.jpg\">Enlarge this image<\/a>\n        <\/div>\n<\/div>\n<div>\n<div>\n<div>\n<p>\n                Green hugs his 12-year-old son, Ty. Green coaches Ty in football and insists his son is playing a much safer game than his father did in the 1980s and 90s. Still, Green and his wife disagree about Ty&#8217;s participation. Illyssa Green doesn&#8217;t want her son playing; Tim supports it as long as Ty wants to play.<\/p>\n<p>                <b><\/p>\n<p>                    Heather Ainsworth for NPR<\/p>\n<p>                <\/b><br \/>\n                <b><b>hide caption<\/b><\/b>\n            <\/p>\n<\/p><\/div>\n<p>            <b><b>toggle caption<\/b><\/b>\n    <\/div>\n<p>    <span><\/p>\n<p>        Heather Ainsworth for NPR<\/p>\n<p>    <\/span>\n<\/div>\n<\/p><\/div>\n<\/p><\/div>\n<p><!-- END CLASS=\"CONTAINER LARGE BTMBAR\" ID=\"CON675773405\" PREVIEWTITLE=\"FIVE\" --><\/p>\n<p>I ask Tim what keeps him positive through this time. He answers by recounting a period 12 years ago, when Illyssa was diagnosed with cancer.<\/p>\n<p>&#8220;She was out of her mind,&#8221; Tim says, &#8220;and I remember saying to her, you&#8217;ve got great doctors, we&#8217;re gonna beat this and do everything we can. But in the meantime, I don&#8217;t want you to wallow in fear and anxiety and misery. I said, because we have a very good life and if you have a good life &#8230; and a lot of people do, maybe they don&#8217;t realize it, but they do&#8230; but if you have a good life, it&#8217;s never long enough. We all know it&#8217;s finite.&#8221;<\/p>\n<p>&#8220;So whenever the end point is, I ask to be strong enough to maintain that positive attitude no matter what the challenges are.&#8221;<\/p>\n<p>Today, Illyssa is cancer free. And it&#8217;s Tim trying to live by his own advice.<\/p>\n<p>As I leave, I stop to look at two large sculptures outside their house. One is of five kids, playing. The other is a lone figure. A helmeted football player, running and catching a pass over the shoulder. Tim says it&#8217;s an homage to the game, that let him &#8220;buy this amazing property and build a comfortable home.&#8221;<\/p>\n<p>A home, and family, that now mean even more than they have all along.<\/p>\n<div>\n<div>\n    <img decoding=\"async\" src=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_37_slide-568efeda48bcf6c47936cc6731ec71b3228b35c2-s1100-c15.jpg\" alt><\/p>\n<div>\n            <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/media.npr.org\/assets\/img\/2018\/12\/11\/tim_green_37_slide-568efeda48bcf6c47936cc6731ec71b3228b35c2-s1200.jpg\">Enlarge this image<\/a>\n        <\/div>\n<\/div>\n<div>\n<div>\n<div>\n<p>\n                A statue of a helmeted football player, running and catching a pass over the shoulder. Tim says it&#8217;s an homage to the game, that let him &#8220;buy this amazing property and build a comfortable home.&#8221;<\/p>\n<p>                <b><\/p>\n<p>                    Heather Ainsworth for NPR<\/p>\n<p>                <\/b><br \/>\n                <b><b>hide caption<\/b><\/b>\n            <\/p>\n<\/p><\/div>\n<p>            <b><b>toggle caption<\/b><\/b>\n    <\/div>\n<p>    <span><\/p>\n<p>        Heather Ainsworth for NPR<\/p>\n<p>    <\/span>\n<\/div>\n<\/p><\/div>\n<p><strong><a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/blockads.fivefilters.org\/\">Let&#8217;s block ads!<\/a><\/strong> <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/blockads.fivefilters.org\/acceptable.html\">(Why?)<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[221],"tags":[],"class_list":["post-18262","post","type-post","status-publish","format-standard","hentry","category-sports"],"_links":{"self":[{"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/posts\/18262","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/comments?post=18262"}],"version-history":[{"count":0,"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/posts\/18262\/revisions"}],"wp:attachment":[{"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/media?parent=18262"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/categories?post=18262"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/tags?post=18262"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}