{"id":6854,"date":"2016-05-29T10:14:36","date_gmt":"2016-05-29T10:14:36","guid":{"rendered":"http:\/\/associatednews.us\/content\/2016\/05\/29\/death-talk-is-cool-at-this-festival\/"},"modified":"2016-05-29T10:14:36","modified_gmt":"2016-05-29T10:14:36","slug":"death-talk-is-cool-at-this-festival","status":"publish","type":"post","link":"https:\/\/associatednews.us\/content\/death-talk-is-cool-at-this-festival\/","title":{"rendered":"Death Talk Is Cool At This Festival"},"content":{"rendered":"<p><span style=\"font-style:italic;font-size:16px\">By  <a class=\"colorbox\" href=\"http:\/\/www.npr.org\/sections\/health-shots\/2016\/05\/29\/478676271\/death-talk-is-cool-at-this-festival?utm_medium=RSS&amp;utm_campaign=healthcare\">Jake Harper<\/a><\/span>  <\/p>\n<div class=\"ftpimagefix\" style=\"float:left\"><a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/www.npr.org\/sections\/health-shots\/2016\/05\/29\/478676271\/death-talk-is-cool-at-this-festival?utm_medium=RSS&amp;utm_campaign=healthcare\"><img decoding=\"async\" width=\"150\" src=\"https:\/\/media.npr.org\/assets\/img\/2016\/05\/20\/harper_dsc00307_edited_custom-fc47a69f17cb932e5d996f26c458ab4ef7ce0170-s1100-c15.jpg\" title='A chalkboard \"bucket list\" stirred imaginations and got people talking at an Indianapolis festival designed to help make conversations about death easier.' alt='A chalkboard \"bucket list\" stirred imaginations and got people talking at an Indianapolis festival designed to help make conversations about death easier.'><\/a><\/div>\n<div>\n<div><\/div>\n<div>\n<div>\n<p>A chalkboard &#8220;bucket list&#8221; stirred imaginations and got people talking at an Indianapolis festival designed to help make conversations about death easier. <strong>Jake Harper\/WFYI<\/strong> <strong>hide caption<\/strong><\/p>\n<\/div>\n<p><strong>toggle caption<\/strong> <span>Jake Harper\/WFYI<\/span><\/div>\n<\/div>\n<p>In a sunny patch of grass in the middle of Indianapolis&#8217; Crown Hill Cemetery, 45 people recently gathered around a large blackboard. The words &#8220;Before I Die, I Want To &#8230;&#8221; were stenciled on the board in bold white letters.<\/p>\n<p>Sixty-two-year-old Tom Davis led us through the thousands of gravestones scattered across the cemetery. He&#8217;d been thinking about his life and death a lot in the previous few weeks, he told us. On March 22, he&#8217;d had a heart attack.<\/p>\n<p>Davis said he originally planned to jot, &#8220;I want to believe people care about me.&#8221; But after his heart attack, he found he had something new to write: &#8220;I want to see my grandkids grow up.&#8221;<\/p>\n<p>Others at the event grabbed a piece of chalk to write down their dreams, too, including some whimsical ones: Hold a sloth. Visit an active volcano. Finally see Star Wars.<\/p>\n<p>The cemetery tour was part of the city&#8217;s <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.facebook.com\/beforeidiefestivalindy\/\">Before I Die Festival<\/a>, held in mid-April \u2014 the first festival of its kind in the U.S. The <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/www.beforeidiefestival.co.uk\/about\/\">original one<\/a> was held in Cardiff, Wales, in 2013, and the idea has since spread to the U.K., and now to Indianapolis.<\/p>\n<p>The purpose of each gathering is to get people thinking ahead \u2014 about topics like what they want to accomplish in their remaining days, end-of-life care, funeral arrangements, wills, organ donation, good deaths and bad \u2014 and to spark conversations.<\/p>\n<p>&#8220;This is an opportunity to begin to change the culture, to make it possible for people to think about and talk about death so it&#8217;s not a mystery,&#8221; said the festival&#8217;s organizer <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/nursing.iupui.edu\/directory\/profiles\/faculty\/wocial-lucia.shtml\">Lucia Wocial<\/a>, a nurse ethicist at the Fairbanks Center for Medical Ethics in Indianapolis.<\/p>\n<p>The festival included films, book discussions and death-related art. One exhibit at the <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/www.vonnegutlibrary.org\/what-is-the-vonnegut-library\/\">Kurt Vonnegut Memorial Library<\/a> had on display 61 pairs of boots, representing the fallen soldiers from Indiana who died at age 21 or younger.<\/p>\n<p>These festivals grew out of a larger movement that includes <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/www.newsworks.org\/index.php\/local\/the-pulse\/87600-from-fears-to-fascinations-what-exactly-is-a-death-salon\">Death Cafes<\/a>, salon-like discussions of death that are held in dozens of cities around the country, and <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/beforeidie.cc\/site\/about\/\">Before I Die walls<\/a> \u2014 chalked lists of aspirational reflections that have now gone up in more than 1,000 neighborhoods around the world.<\/p>\n<p>&#8220;Death has changed,&#8221; Wocial said. &#8220;Years ago people just died. Now death, in many cases, is an orchestrated event.&#8221;<\/p>\n<p>Medicine has brought new ways to extend life, she says, forcing patients and families to make a lot of end-of-life decisions about things people may not have thought of in advance.<\/p>\n<p>&#8220;You&#8217;re probably not just going to drop dead one day,&#8221; she said. &#8220;You or a family member will be faced with a decision: &#8216;I could have that surgery or this treatment.&#8217; Who knew dying was so complicated?&#8221;<\/p>\n<p>With that in mind, the festival organizers held a workshop on advance care planning, including how to write an <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/www.npr.org\/sections\/health-shots\/2012\/03\/08\/148236468\/oregon-emphasizes-choices-at-lifes-end\">advance directive<\/a>, the document that tells physicians and hospitals what interventions, if any, you want them to make on your behalf if you&#8217;re terminally ill and can&#8217;t communicate your wishes. The document might also list a family member or friend you&#8217;ve designated to make decisions for you if you become incapacitated.<\/p>\n<p>&#8220;If you have thought about it when you&#8217;re not in the midst of a crisis, the crisis will be better,&#8221; Wocial said. &#8220;Guaranteed.&#8221;<\/p>\n<p>About a <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/kff.org\/medicare\/fact-sheet\/10-faqs-medicares-role-in-end-of-life-care\/\">quarter of Medicare spending<\/a> in the U.S. goes to end-of-life care. Bills that insurance doesn&#8217;t cover are usually left to the patients and their families to pay.<\/p>\n<p><a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.marian.edu\/osteopathic-medical-school\/education\/faculty\/jason-t-eberl-ph-d-\">Jason Eberl<\/a>, a medical ethicist from Marian University who spoke at the festival, said advance directives can address these financial issues, too. &#8220;People themselves, in their advance directive will say, &#8216;Look, I don&#8217;t want to drain my kids college savings or my wife&#8217;s retirement account, to go through one round of chemo when there&#8217;s only a 15 percent chance of remission. I&#8217;m not going to do that to them.&#8217; &#8220;<\/p>\n<p>The festival also included tour of a cremation facility in downtown Indianapolis. There are a lot of options for disposing of human ashes, it turns out. You can place them in a biodegradable urn, for example, have them blown into glass \u2014 even, for a price, turn them into a diamond.<\/p>\n<p>&#8220;It&#8217;s not inexpensive,&#8221; Eddie Beagles, vice president of Flanner and Buchanan, a chain of funeral homes in the Indianapolis area, told our tour group. &#8220;The last time I looked into it for a family, &#8220;it was about $10,000.&#8221;<\/p>\n<div>\n<div><img decoding=\"async\" src=\"https:\/\/media.npr.org\/assets\/img\/2016\/05\/20\/harper_dsc00266_edited_custom-ae171ae21d6e7a7899be1791a2f2804678942411-s1100-c15.jpg\" title=\"A crematorium tour was part of the festival, too. Metal balls, pins, sockets and screws survive the fire of cremation.\" alt=\"A crematorium tour was part of the festival, too. Metal balls, pins, sockets and screws survive the fire of cremation.\"><\/div>\n<div>\n<div>\n<p>A crematorium tour was part of the festival, too. Metal balls, pins, sockets and screws survive the fire of cremation. <strong>Jake Harper\/WFYI<\/strong> <strong>hide caption<\/strong><\/p>\n<\/div>\n<p><strong>toggle caption<\/strong> <span>Jake Harper\/WFYI<\/span><\/div>\n<\/div>\n<p>&#8220;Really, when it comes to cremation, there&#8217;s always somebody coming up with a million dollar idea,&#8221; Beagles added. &#8220;If you can think of it, they can do it.&#8221;<\/p>\n<p>Beagles showed us a pile of detritus from cremated human remains. He picked up a hip replacement \u2014 a hollow metal ball \u2014 then dropped it back into the ashes.<\/p>\n<p>I&#8217;m a health reporter, so I know a fair amount about the things that <em>could<\/em> kill me, or are already killing me. But watching this piece of metal that used to be inside a human be tossed back onto the heap gave me pause. I&#8217;m thinking about what I might write on a &#8220;Before I Die&#8221; wall. I still don&#8217;t know \u2014 there are many things to do before I go. But I&#8217;m thinking about it a lot harder now.<\/p>\n<p><em>This story is part of NPR&#8217;s reporting partnership with<\/em> <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/sideeffectspublicmedia.org\/\">Side Effects Public Media<\/a> <em>and<\/em> <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/www.kaiserhealthnews.org\/\">Kaiser Health News<\/a><em>.<\/em><\/p>\n<p><strong><a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/blockads.fivefilters.org\/\">Let&#8217;s block ads!<\/a><\/strong> <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/github.com\/fivefilters\/block-ads\/wiki\/There-are-no-acceptable-ads\">(Why?)<\/a><\/p>\n<p>Source:: <a href=\"http:\/\/www.npr.org\/sections\/health-shots\/2016\/05\/29\/478676271\/death-talk-is-cool-at-this-festival?utm_medium=RSS&amp;utm_campaign=healthcare\" class=\"colorbox\" title=\"Death Talk Is Cool At This Festival\" rel=\"nofollow\">http:\/\/www.npr.org\/sections\/health-shots\/2016\/05\/29\/478676271\/death-talk-is-cool-at-this-festival?utm_medium=RSS&amp;utm_campaign=healthcare<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<div class=\"ftpimagefix\" style=\"float:left\"><a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/www.npr.org\/sections\/health-shots\/2016\/05\/29\/478676271\/death-talk-is-cool-at-this-festival?utm_medium=RSS&amp;utm_campaign=healthcare\"><img decoding=\"async\" width=\"150\" src=\"https:\/\/media.npr.org\/assets\/img\/2016\/05\/20\/harper_dsc00307_edited_custom-fc47a69f17cb932e5d996f26c458ab4ef7ce0170-s1100-c15.jpg\" title='A chalkboard \"bucket list\" stirred imaginations and got people talking at an Indianapolis festival designed to help make conversations about death easier.' alt='A chalkboard \"bucket list\" stirred imaginations and got people talking at an Indianapolis festival designed to help make conversations about death easier.'><\/a><\/div>\n<div>\n<div><\/div>\n<div>\n<div>\n<p>A chalkboard &#8220;bucket list&#8221; stirred imaginations and got people talking at an Indianapolis festival designed to help make conversations about death easier. <strong>Jake Harper\/WFYI<\/strong> <strong>hide caption<\/strong><\/p>\n<\/div>\n<p><strong>toggle caption<\/strong> <span>Jake Harper\/WFYI<\/span><\/div>\n<\/div>\n<p>In a sunny patch of grass in the middle of Indianapolis&#8217; Crown Hill Cemetery, 45 people recently gathered around a large blackboard. The words &#8220;Before I Die, I Want To &#8230;&#8221; were stenciled on the board in bold white letters.<\/p>\n<p>Sixty-two-year-old Tom Davis led us through the thousands of gravestones scattered across the cemetery. He&#8217;d been thinking about his life and death a lot in the previous few weeks, he told us. On March 22, he&#8217;d had a heart attack.<\/p>\n<p>Davis said he originally planned to jot, &#8220;I want to believe people care about me.&#8221; But after his heart attack, he found he had something new to write: &#8220;I want to see my grandkids grow up.&#8221;<\/p>\n<p>Others at the event grabbed a piece of chalk to write down their dreams, too, including some whimsical ones: Hold a sloth. Visit an active volcano. Finally see Star Wars.<\/p>\n<p>The cemetery tour was part of the city&#8217;s <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.facebook.com\/beforeidiefestivalindy\/\">Before I Die Festival<\/a>, held in mid-April \u2014 the first festival of its kind in the U.S. The <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/www.beforeidiefestival.co.uk\/about\/\">original one<\/a> was held in Cardiff, Wales, in 2013, and the idea has since spread to the U.K., and now to Indianapolis.<\/p>\n<p>The purpose of each gathering is to get people thinking ahead \u2014 about topics like what they want to accomplish in their remaining days, end-of-life care, funeral arrangements, wills, organ donation, good deaths and bad \u2014 and to spark conversations.<\/p>\n<p>&#8220;This is an opportunity to begin to change the culture, to make it possible for people to think about and talk about death so it&#8217;s not a mystery,&#8221; said the festival&#8217;s organizer <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/nursing.iupui.edu\/directory\/profiles\/faculty\/wocial-lucia.shtml\">Lucia Wocial<\/a>, a nurse ethicist at the Fairbanks Center for Medical Ethics in Indianapolis.<\/p>\n<p>The festival included films, book discussions and death-related art. One exhibit at the <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/www.vonnegutlibrary.org\/what-is-the-vonnegut-library\/\">Kurt Vonnegut Memorial Library<\/a> had on display 61 pairs of boots, representing the fallen soldiers from Indiana who died at age 21 or younger.<\/p>\n<p>These festivals grew out of a larger movement that includes <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/www.newsworks.org\/index.php\/local\/the-pulse\/87600-from-fears-to-fascinations-what-exactly-is-a-death-salon\">Death Cafes<\/a>, salon-like discussions of death that are held in dozens of cities around the country, and <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/beforeidie.cc\/site\/about\/\">Before I Die walls<\/a> \u2014 chalked lists of aspirational reflections that have now gone up in more than 1,000 neighborhoods around the world.<\/p>\n<p>&#8220;Death has changed,&#8221; Wocial said. &#8220;Years ago people just died. Now death, in many cases, is an orchestrated event.&#8221;<\/p>\n<p>Medicine has brought new ways to extend life, she says, forcing patients and families to make a lot of end-of-life decisions about things people may not have thought of in advance.<\/p>\n<p>&#8220;You&#8217;re probably not just going to drop dead one day,&#8221; she said. &#8220;You or a family member will be faced with a decision: &#8216;I could have that surgery or this treatment.&#8217; Who knew dying was so complicated?&#8221;<\/p>\n<p>With that in mind, the festival organizers held a workshop on advance care planning, including how to write an <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/www.npr.org\/sections\/health-shots\/2012\/03\/08\/148236468\/oregon-emphasizes-choices-at-lifes-end\">advance directive<\/a>, the document that tells physicians and hospitals what interventions, if any, you want them to make on your behalf if you&#8217;re terminally ill and can&#8217;t communicate your wishes. The document might also list a family member or friend you&#8217;ve designated to make decisions for you if you become incapacitated.<\/p>\n<p>&#8220;If you have thought about it when you&#8217;re not in the midst of a crisis, the crisis will be better,&#8221; Wocial said. &#8220;Guaranteed.&#8221;<\/p>\n<p>About a <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/kff.org\/medicare\/fact-sheet\/10-faqs-medicares-role-in-end-of-life-care\/\">quarter of Medicare spending<\/a> in the U.S. goes to end-of-life care. Bills that insurance doesn&#8217;t cover are usually left to the patients and their families to pay.<\/p>\n<p><a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/www.marian.edu\/osteopathic-medical-school\/education\/faculty\/jason-t-eberl-ph-d-\">Jason Eberl<\/a>, a medical ethicist from Marian University who spoke at the festival, said advance directives can address these financial issues, too. &#8220;People themselves, in their advance directive will say, &#8216;Look, I don&#8217;t want to drain my kids college savings or my wife&#8217;s retirement account, to go through one round of chemo when there&#8217;s only a 15 percent chance of remission. I&#8217;m not going to do that to them.&#8217; &#8220;<\/p>\n<p>The festival also included tour of a cremation facility in downtown Indianapolis. There are a lot of options for disposing of human ashes, it turns out. You can place them in a biodegradable urn, for example, have them blown into glass \u2014 even, for a price, turn them into a diamond.<\/p>\n<p>&#8220;It&#8217;s not inexpensive,&#8221; Eddie Beagles, vice president of Flanner and Buchanan, a chain of funeral homes in the Indianapolis area, told our tour group. &#8220;The last time I looked into it for a family, &#8220;it was about $10,000.&#8221;<\/p>\n<div>\n<div><img decoding=\"async\" src=\"https:\/\/media.npr.org\/assets\/img\/2016\/05\/20\/harper_dsc00266_edited_custom-ae171ae21d6e7a7899be1791a2f2804678942411-s1100-c15.jpg\" title=\"A crematorium tour was part of the festival, too. Metal balls, pins, sockets and screws survive the fire of cremation.\" alt=\"A crematorium tour was part of the festival, too. Metal balls, pins, sockets and screws survive the fire of cremation.\"><\/div>\n<div>\n<div>\n<p>A crematorium tour was part of the festival, too. Metal balls, pins, sockets and screws survive the fire of cremation. <strong>Jake Harper\/WFYI<\/strong> <strong>hide caption<\/strong><\/p>\n<\/div>\n<p><strong>toggle caption<\/strong> <span>Jake Harper\/WFYI<\/span><\/div>\n<\/div>\n<p>&#8220;Really, when it comes to cremation, there&#8217;s always somebody coming up with a million dollar idea,&#8221; Beagles added. &#8220;If you can think of it, they can do it.&#8221;<\/p>\n<p>Beagles showed us a pile of detritus from cremated human remains. He picked up a hip replacement \u2014 a hollow metal ball \u2014 then dropped it back into the ashes.<\/p>\n<p>I&#8217;m a health reporter, so I know a fair amount about the things that <em>could<\/em> kill me, or are already killing me. But watching this piece of metal that used to be inside a human be tossed back onto the heap gave me pause. I&#8217;m thinking about what I might write on a &#8220;Before I Die&#8221; wall. I still don&#8217;t know \u2014 there are many things to do before I go. But I&#8217;m thinking about it a lot harder now.<\/p>\n<p><em>This story is part of NPR&#8217;s reporting partnership with<\/em> <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/sideeffectspublicmedia.org\/\">Side Effects Public Media<\/a> <em>and<\/em> <a class=\"colorbox\" rel=\"nofollow\" href=\"http:\/\/www.kaiserhealthnews.org\/\">Kaiser Health News<\/a><em>.<\/em><\/p>\n<p><strong><a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/blockads.fivefilters.org\/\">Let&#8217;s block ads!<\/a><\/strong> <a class=\"colorbox\" rel=\"nofollow\" href=\"https:\/\/github.com\/fivefilters\/block-ads\/wiki\/There-are-no-acceptable-ads\">(Why?)<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[47],"tags":[],"class_list":["post-6854","post","type-post","status-publish","format-standard","hentry","category-health"],"_links":{"self":[{"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/posts\/6854","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/comments?post=6854"}],"version-history":[{"count":0,"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/posts\/6854\/revisions"}],"wp:attachment":[{"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/media?parent=6854"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/categories?post=6854"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/associatednews.us\/content\/wp-json\/wp\/v2\/tags?post=6854"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}